About the project
The project monitored children with cerebral palsy (CP) in preschool years with data being collected biannually. The information collected could provide new knowledge on habilitation processes, interventions and services for children with complex disabilities.
Objectives
The aim was to collect information on habilitation processes for children with CP in Norway in order to:
• Describe development trajectories, interventions and services provided to the children and their families throughout the preschool years.
• Provide evidence-based knowledge on the relationships between the child’s characteristics and interventions as well as other important outcomes associated with the children and their families.
The project focused on periods of intensive habilitation, parental involvements in the child’s development, participation in activities as well as the quality of life of the involved parties. Financial cost was also evaluated.
The database created through CPHAB can strengthen the foundation of decision making for CP interventions and services in Norway. In addition, it will be used in the development of a follow-up program that aims to address the complexity of the condition.
Background
The project was carried out in cooperation with the CP registry (CPRN), the Motor skill follow-up program for children with CP (CPOP), children habilitation services at healthcare providers, Oslo University Hospitals, Department of Pediatric Neurology, OsloMet, Faculty of health sciences, and CP association over a period of 4 years.
Research shows that the availability of appropriate and early support to children and their families is critical to the short-term and long-term development of children with CP. An ecological and sociocultural understanding of development will increase the child's ability to participate in activities in all facets of life.
From the time the child was registered with CPRN/CPOP, systematic follow-ups were carried out every 6 months for a minimum of 3 years. One of the purposes of the project was to identify interventions and services that could improve participation in activities and quality of life over time. The information obtained from this research- in habilitation trajectories and parental experience with services - is necessary to develop equitable and effective services for children with complex conditions such as CP.
Gunvor Lilleholt Klevberg, was employed in the project and has completed her PhD study "Hand function and habilitation services in Cerebral Palsy".
Sub-projects
When the main project was in progress, the program was further expanded into various subprojects in order to examine the validity of the data collection methods, develop in- depth projects through considering intervention content, and how CP services could best be organized and delivered.
Financing
- Research Council of Norway through CHARM
- OsloMet
- Oslo University Hopitals, Sofies Minde foundation.
- Has applied for additional funding in health and rehabilitation sector to support biannual data collection.
Cooperation
CPHAB was a collaborative project between clinical habilitation health services, research and academic institutions both nationally and internationally.
- OsloMet, Faculty of Health Sciences
- Oslo University Hospitals, Department of pediatric neurology
- Northern Norway University hospital, Department of child habilitation
- CP Association
Results
- Ergoterapeuter og barnehabilitering - hvordan kan ergoterapeuter bidra til å fremme håndfunksjon og deltakelse i hverdagsaktivitet hos barn med cerebral parese?, Ergoterapeuten, 2013, 56 (06), s.56-61, 2013, Klevberg G.L., Kjeken, I., Jahnsen, R.
- Hand Function in Young Children with Cerebral Palsy: Current Practice and Parent-Reported Benefits, Klevberg GL, Østensjø S, Elkjær S, Kjeken I, Jahnsen RB. Physical & Occupational Therapy in Pediatrics 1–16, 2016, DOI: 10.3109/01942638.2016.1158221.
- Hand Function in a Population-Based Sample of Young Children with Unilateral or Bilateral Cerebral Palsy, Phys Occup Ther Pediatr. 2017 ISSN: 0194-2638 (Print) 1541-3144 (Online) DOI:10.1080/01942638.2017.1280873. Klevberg GL, Østensjø S, Krumlinde-Sundholm L, Elkjær S, Jahnsen RB.
- Familiesentrerte tjenester for barn Familiesentrerte tjenester for barn med funksjonsnedsettelse – fra ideal til konkrete praksiser. Fysioterapeuten 2017, in press. Østensjø, S.
- Håndfunksjon og intensiv trening. CP-bladet nr.3, 2017. Tidsskrift for Cerebral Pareseforeningen, Klevberg, GL, Jahnsen, R.
- Development of bimanual performance in young children with cerebral palsy. Klevberg, GL, Elvrum AG, Zucknikc M, Elkjær S, Østensjø S, Krumlinde-Sundholm L, Kjeken I, Jahnsen R. Dev Med Child Neurol. 2018 Feb 2. doi: 10.1111/dmcn.13680, PMID: 29392717.
Start - end
2013 – 2017