A Study of Pakistani Norwegian Families after Genetic Counseling

This study is a part of the study “Measuring the patient empowerment in clinical genetics” conducted as a collaboration between Oslo University Hospital and Oslo and Akershus University College of Applied Science.   

About the project

This study is focusing on the families after genetic counseling. Genetic counseling is offered as a policlinic service at the Department of Medical Genetics at Oslo University Hospital. My ethnographic PhD-project about genetic counseling among Pakistani Norwegian families with disabled children and other reproductive challenges focused especially on access to genetic information and the families’ understanding of kinship, disease, inheritance and risk (Sajjad 2011).             

This study will explore how the families understand and manage the new information, the impact of genetic counseling on the families and to what extent genetic counseling contribute to “empower” their life situation with one or more children with congenital and serious conditions. It means that the study is both a follow-up and an extension of the former research topic in this field.      

Objectives

Generate new knowledge about Pakistani Norwegian with serious ill/disabled children after genetic counseling as a contribution to further develop methods to improve the medical genetic counseling services for ethnic minority families.     

Financing

  • University of Oslo

Cooperation

  • Oslo University Hospital and Oslo
  • Akershus University College of Applied Science

Start - finish

July 2014 - June 2016

Published Nov. 26, 2014 1:09 PM - Last modified Aug. 27, 2015 8:48 AM