Roadmap for a precision-medicine initiative in the Nordic region.

Authors of a paper published in Nature Genetics include several NCMM Associate Investigators, heads of Norwegian EATRIS platforms, and scientists from the Finnish Nordic EMBL Partnership node, FIMM

Image from roadmap paper

Fig. 1: The Nordic countries, a geographical and cultural region in Northern Europe and the North and Norwegian Seas. 

The Nordic region, made up of Denmark, Estonia, Finland, Iceland, Norway, and Sweden, has many unique and necessary characteristics that place it at the forefront of genome-based precision medicine. 

Unique research landscape for genetics & precision medicine research

Such characteristics include equal and universal access to healthcare, expertly curated patient and population registries and biobanks, with large population-based prospective cohorts linked to these registries and biobanks, alongside a population that generally has a sense of social responsibility and openness towards biomedical research. 

The article, “Roadmap for a precision-medicine initiative in the Nordic region,” Pål Njølstad et al. published in Nature Genetics in June 2019, sets out a vision for how scientists in the Nordic region could be organized alongside stakeholders, patient groups, governments, academic institutions, industry, and funding agencies to initiate a Nordic Precision Medicine Initiative.

Initative will engage the main players from precision medicine in the Nordic region

To realise the initiative, the Nordic Society for Human Genetics and Precision Medicine has been created. The Society has launched a roadmap, with a number of suggestions to help drive activity. Alongside research objectives, the Society will act as a vehicle to engage the many players within precision medicine. It will also work to communicate accurate, up-to-date information to policymakers, research funders, and the public. 

The authors hope that the initiative will accelerate research, clinical trials, and the transmission of knowledge to help meet numerous local, regional, and global health challenges, and take advantage of the unique Nordic research landscape. 

Read the article in full at

Further information can be found on the Nordic Society for Human Genetics and Precision Medicine website:

Published June 24, 2019 10:01 AM - Last modified June 24, 2019 10:01 AM