About the project
RareICT combines several wikis with semantic tagging and meta-data in a secure environment for patient-provider communication, MinJournal. Different stakeholders: persons diagnosed with a rare diagnosis; parents and family members; and health care providers (nurses, social workers, doctors) are offered a dynamic virtual environment to accumulate, exchange, develop and discuss contributed information, experiences and knowledge in a secure setting.
Objectives
The purpose of this project is to develop a secure web-based environment as a learning resource that explores, systematizes and exchanges information and knowledge of “living well” with a rare diagnosis. In particular, the focus is towards everyday experiences and challenges, self-care and independence, peer-support and new modes of collaboration with the health care system.
Outcomes
RareICT is a service integrated in the patient portal MinJournal
Financing
Medinnova
Cooperation
- Senter for sjeldne diagnoser, Oslo University Hospital, Rikshospitalet
- IT-Department, Oslo University Hospital, Rikshospitalet
- InterMedia
Start - Finish
2009 - 2011