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Family centered intervention after TBI (completed)

The family as a resource for improved patient and family functioning after traumatic brain injury - a randomized controlled trial

Objectives

The objective is to 1) evaluate the feasibility of a family centered intervention provided in collaboration with municipal health professionals, 2) explore aspects of mental health and family functioning in people with TBI, and 3) determine the effectiveness of a family-oriented intervention to improve self-reported health-related quality of life (HRQL), burden of care, and family functioning compared to a group receiving interdisciplinary follow-up at a TBI outpatient clinic.

Background

Traumatic brain injury is challenging for those sustaining the injury as well as for their families. There has been an increased focus on family functioning and the family's participation in the rehabilitation process after TBI. Nevertheless, there is insufficient knowledge on evidence-based measures and effective family-centered interventions.   

Method

In accordance with the recommendations for complex interventions, a feasibility study was carried out to as a pilot for a family oriented intervention. In the subsequent effect study, the families were randomized to a receive a manualized family oriented intervention with 8 sessions; while the families in the control group received an information session only without any additional intervention. 

Results

Sixty one families participated in the study. At the beginning of the intervention, 48 % of the patients had reduced HRQL, and they had worse depressive symptoms and lower levels of resilience and self reliance compared to the family members. Over 50 % of the family members reported mild to moderate depressive symptoms. Being woman, the presence of psychological problems and lower levels of resilience were factors associated with lower mental HRQL in the patients and the family members. Family intervention combined with specialized follow ups yielded no additional advantage compared to only specialized follow ups, even though it could have contributed to faster recovery during the treatment period.

Conclusion

This study has provided new insights into how families response to TBI, it also describes an innovative intervention for family oriented care after TBI that can be applicable to other patient groups. 

Funding

The Extra Foundation for Health and Rehabilitation and the National Association for the Traumatically Injured (LTN).

Cooperation

  • Trauma Rehabilitation Research Unit at the Oslo University Hospitals
  • Baerum Municipality, Dept. of Health and Rehabilitation
  • Juan Carlos Arango-Lasprilla, BioCruces Health Research Institute, Cruces University Hospital, Spain

Phd students

  • Mari S. Rasmussen has completed her PhD in the project.

Selected publications

Published Mar. 16, 2018 4:46 PM - Last modified June 23, 2022 3:03 PM

Contact

Principal Investigator

Helene L. Søberg

PhD Student:

Mari S. Rasmussen

Participants

  • Nada Hadzic-Andelic
  • Anne Norup
  • Juan Carlos Arango Lasprilla
  • Mari S. Rasmussen
  • Tonje Haug Nordenmark
Detailed list of participants