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Keij, Sascha M.; Lie, Hanne Cathrine; Laidsaar-Powell, Rebekah; Kunneman, Marleen; de Boer, Joyce E. & Moaddine, Saïda
[Show all 8 contributors for this article]
(2024).
Corrigendum to ‘Patient-related characteristics considered to affect patient involvement in shared decision making about treatment: A scoping review of the qualitative literature’ Patient Education and Counseling 111 (2023) 107677 (Patient Education and Counseling (2023) 111, (S0738399123000575), (10.1016/j.pec.2023.107677)).
Patient Education and Counseling.
ISSN 0738-3991.
doi:
10.1016/j.pec.2024.108257.
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Egenberg, Herman Escher; Gerwing, Jennifer; Lie, Hanne Cathrine; Gulbrandsen, Pål & Menichetti, Julia
(2023).
Erratum: Withdrawal notice to “If I say…teach-back” [Patient Educ Couns 116 (2023) 107982] (Patient Education and Counseling (2023) 116, (S0738399123003440), (10.1016/j.pec.2023.107964)).
Patient Education and Counseling.
ISSN 0738-3991.
116.
doi:
10.1016/j.pec.2023.107991.
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Larsen, Elna Hamilton; Wahl, Astrid Klopstad; Ruud, Ellen; Mellblom, Anneli; Ålykkja, Anette & Lie, Hanne Cathrine
(2023).
Adolescent cancer survivors and their parents’ experiences with the transition off-treatment to survivorship – A qualitative interview study.
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Larsen, Marie Hamilton; Larsen, Elna Hamilton; Ålykkja, Anette; Underhaug, Katrine Aass; Ruud, Ellen & Lie, Hanne Cathrine
(2023).
The Post-it note just said leukaemia -experiences of teachers and local stakeholders supporting young childhood cancer survivors at school: A qualitative study .
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Nilsen, Tormod Skogstad; Sæter, Mali; Sarvari, Sebastian; Reinertsen, Kristin Valborg; Johansen, Sara Hassing & Edvardsen, Elisabeth Rustad
[Show all 17 contributors for this article]
(2023).
Effects of Aerobic Exercise on Cardiorespiratory Fitness, Cardiovascular Risk Factors, and Patient-Reported Outcomes in Long-Term Breast Cancer Survivors: Protocol for a Randomized Controlled Trial.
JMIR Research Protocols.
ISSN 1929-0748.
12.
doi:
10.2196/45244.
Full text in Research Archive
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Heggebø, Liv Cathrine; Borgen, Ida Maria Henriksen; Rylander, Hillevi; Kiserud, Cecilie E.; Nordenmark, Tonje Kristin Haug & Hellebust, Taran Annette Paulsen
[Show all 44 contributors for this article]
(2023).
Investigating survival, quality of life and cognition in PROton versus photon therapy for IDH- mutated diffuse grade 2 and 3 GLIOmas (PRO-GLIO): a randomised controlled trial in Norway and Sweden.
BMJ Open.
ISSN 2044-6055.
13(3).
doi:
10.1136/bmjopen-2022-070071.
Full text in Research Archive
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Menichetti, Julia; Gerwing, Jennifer; Landmark, Anne Marie Dalby; Lie, Hanne Cathrine & Gulbrandsen, Pål
(2022).
Formulations used by doctors to provide information to patients: A video-based study
.
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Larsen, Elna Hamilton; Wahl, Astrid Klopstad; Ruud, Ellen; Mellblom, Anneli & Lie, Hanne Cathrine
(2022).
Adolescents transition experiences when active treatment ends - Results from a qualitative interview study.
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Larsen, Marie Hamilton; Larsen, Elna Hamilton; Ålykkja, Anette; Underhaug, Katrine Aass; Ruud, Ellen & Lie, Hanne Cathrine
(2022).
"The post-it note just said leukemia” - experiences of teachers and local stakeholders of young childhood cancer survivors attending school – a qualitative study from the PACCS group .
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Lie, Hanne Cathrine; Anderssen, Sigmund Alfred; Rueegg, Corina Silvia; Raastad, Truls; Grydeland, May & Thorsen, Lene
[Show all 21 contributors for this article]
(2022).
The Physical Activity and Fitness in Childhood Cancer Survivors (PACCS) Study: Protocol for an International Mixed Methods Study.
JMIR Research Protocols.
ISSN 1929-0748.
11(3).
doi:
10.2196/35838.
Show summary
Methods
Results
Discussion
References
Abbreviations
Copyright
Abstract
Background: Survivors of childhood cancer represent a growing population with a long life expectancy but high risks of treatment-induced morbidity and premature mortality. Regular physical activity (PA) may improve their long-term health; however, high-quality empirical knowledge is sparse.
Objective: The Physical Activity and Fitness in Childhood Cancer Survivors (PACCS) study comprises 4 work packages (WPs) aiming for the objective determination of PA and self-reported health behavior, fatigue, and quality of life (WP 1); physical fitness determination (WP 2); the evaluation of barriers to and facilitators of PA (WP 1 and 3); and the feasibility testing of an intervention to increase PA and physical fitness (WP 4).
Methods: The PACCS study will use a mixed methods design, combining patient-reported outcome measures and objective clinical and physiological assessments with qualitative data gathering methods. A total of 500 survivors of childhood cancer aged 9 to 18 years with ≥1 year after treatment completion will be recruited in follow-up care clinics in Norway, Denmark, Finland, Germany, and Switzerland. All participants will participate in WP 1, of which approximately 150, 40, and 30 will be recruited to WP 2, WP3, and WP 4, respectively. The reference material for WP 1 is available from existing studies, whereas WP 2 will recruit healthy controls. PA levels will be measured using ActiGraph accelerometers and self-reports. Validated questionnaires will be used to assess health behaviors, fatigue, and quality of life. Physical fitness will be measured by a cardiopulmonary exercise test, isometric muscle strength tests, and muscle power and endurance tests. Limiting factors will be identified via neurological, pulmonary, and cardiac evaluations and the assessment of body composition and muscle size. Semistructured, qualitative interviews, analyzed using systematic text condensation, will identify the perceived barriers to and facilitators of PA for survivors of childhood cancer. In WP 4, we will evaluate the feasibility of a 6-month personalized PA intervention with the involvement of local structures.
Results: Ethical approvals have been secured at all participating sites (Norwegian Regional Committee for Medical Research Ethics [2016/953 and 2018/739]; the Oslo University Hospital Data Protection Officer; equivalent institutions in Finland, Denmark [file H-19032270], Germany, and Switzerland [Ethics Committee of Northwestern and Central Switzerland, project ID: 2019-00410]). Data collection for WP 1 to 3 is complete. This will be completed by July 2022 for WP 4. Several publications are already in preparation, and 2 have been published.
Conclusions: The PACCS study will generate high-quality knowledge that will contribute to the development of an evidence-based PA intervention for young survivors of childhood cancer to improve their long-term care and health. We will identify physiological, psychological, and social barriers to PA that can be targeted in interventions with immediate benefits for young survivors of childhood cancer in need of rehabilitation.
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Larsen, Elna Hamilton; Mellblom, Anneli; Wahl, Astrid Klopstad; Ruud, Ellen & Lie, Hanne Cathrine
(2021).
Transitioning to survivorship - Healthcare Professionals views on the off- treatment transition for adolescents with cancer.
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Larsen, Marie Hamilton; Larsen, Elna Hamilton; Ruud, Ellen; Mellblom, Anneli; Helland, Sunniva & Lie, Hanne Cathrine
(2021).
I have to do things different, but make it work - childhood cancer survivors experience of self management in daily living.
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Juvet, Lene Kristine; Brembo, Espen Andreas; Eide, Hilde; Heyn, Lena; Mellblom, Anneli & Gulbrandsen, Pål
[Show all 11 contributors for this article]
(2021).
Communication strategies for providing information in talks with patients: A systematic review.
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Lie, Hanne Cathrine; Mellblom, Anneli; Juvet, Lene Kristine; Heyn, Lena; Sundling, Vibeke & Brembo, Espen Andreas
[Show all 12 contributors for this article]
(2020).
Spoken communication strategies for effective information provision in the medical consultation: A systematic review.
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Ålykkja, Anette; Ruud, Ellen; Larsen, Marie Hamilton; Vatne, Torun Marie & Lie, Hanne Cathrine
(2019).
Available, but not always accessible: A nationwide, qualitative study of multidisciplinary healthcare providers' experiences with follow-up care after paediatric brain tumour.
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Sand, Kari; Lie, Hanne Cathrine; Loge, Jon Håvard; Kiserud, Cecilie E. & Lund, Jo-Åsmund
(2018).
The physician perspective regarding providing information about late-effects to cancer patients and survivors: The dilemma of when and what. A focus group study among Norwegian GPs and oncologists.
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Sand, Kari; Lie, Hanne Cathrine; Kiserud, Cecilie E.; Loge, Jon Håvard & Lund, Jo-Åsmund
(2018).
The physician perspective regarding providing information about late-effects to cancer patients and survivors: The dilemma of when and what.
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Sand, Kari; Lie, Hanne Cathrine; Kiserud, Cecilie E.; Loge, Jon Håvard & Lund, Jo-Åsmund
(2016).
Barriers and opportunities for long-term follow-up care of cancer survivors. A focus group study among Norwegian general practitioners and oncologists.
Show summary
Background: Cancer therapy can cause persisting or late-onset health problems, late effects. At present, there is no consensus regarding the appropriate organization and content of follow-up care of cancer survivors with, or at risk for, late effects. The aim of the study is to examine oncologists' and general practitioners’ views and preferences for models of long-term follow-up care of cancer survivors regarding late effects.
Methods & Materials: We conducted qualitative, focus groups interviews with GPs and oncologists across Norway. So far, 22 oncologists and 24 GPs have participated in 10 focus groups. Six further focus-group interviews are planned. The interviews were audio-recorded, transcribed and analyzed using principles of content analysis.
Results: Preliminary analysis of barriers for long-term follow-up care showed that oncologists seldom meet cancer survivors with late effects in their daily clinical practice, while GPs seldom meet the patient during his/her cancer treatment. Both groups expressed limited knowledge of late effects, available treatment for late effects and rehabilitation options.
In order to facilitate better long-term follow-up care, both oncologists and GPs expressed a need for better communication between primary and specialist care. Dedicated survivorship clinics/coordinators would allow for better coordination of care between health care professionals, serve as a place to contact for information and to accumulate important knowledge regarding late effects and rehabilitation services. GPs regard themselves as the main responsible for the follow-up care, as long the oncologists provide specific procedures for follow-up care for each survivor (e.g. survivorship care passport), and the survivors themselves take responsibility for contacting health care providers when necessary.
Conclusion: Preliminary analysis indicates that oncologists and GPs supports a shard care model for long term follow-up of cancer survivors in Norway, a model in which the specialist and the primary care physicians have defined responsibilities in survivorship care pathways.
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Janberidze, Elene; Hjermstad, Marianne Jensen; Brunelli, Cinzia; Loge, Jon Håvard; Lie, Hanne Cathrine & Kaasa, Stein
[Show all 7 contributors for this article]
(2014).
The use of antidepressants in patients with advanced cancer – results from an international multicenter study.
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Mellblom, Anneli; Lie, Hanne Cathrine; Loge, Jon Håvard; Ruud, Ellen & Finset, Arnstein
(2013).
WHAT ARE THEY WORRIED ABOUT? THE CONTENT OF EMOTIONAL CONCERNS EXPRESSED AT FOLLOW-UP CONSULTATIONS WITH ADOLESCENTS AFTER CHILDHOOD CANCER: A VIDEO-BASED OBSERVATIONAL STUDY.
Pediatric Blood & Cancer.
ISSN 1545-5009.
60,
p. 21–22.
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Korsvold, Live; Finset, Arnstein; Loge, Jon Håvard; Ruud, Ellen & Lie, Hanne Cathrine
(2013).
DELIVERING BAD NEWS TO ANGRY ADOLESCENT PATIENTS - A LITERATURE REVIEW AND A CASE ILLUSTRATION.
Pediatric Blood & Cancer.
ISSN 1545-5009.
60,
p. 179–179.
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Mellblom, Anneli; Lie, Hanne Cathrine; Ruud, E & Finset, Arnstein
(2013).
Expression of Negative Emotion During Follow-up Consultations After Childhood Cancer With Adolescents: A Video-Based Observational Study.
Psycho-Oncology.
ISSN 1057-9249.
22,
p. 65–66.
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Janberidze, Elene; Hjermstad, Marianne Jensen; Brunelli, Cinzia; Loge, Jon Håvard; Lie, Hanne Cathrine & Kaasa, Stein
[Show all 7 contributors for this article]
(2013).
Depression and use of antidepressants in patients with advanced cancer. Results from an international multi-center study.
Show summary
English
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Brenne, Elisabeth; Loge, Jon Håvard; Lie, Hanne Cathrine; Fayers, Peter; Hjermstad, Marianne Jensen & Kaasa, Stein
(2012).
The ESAS as a screening tool of depression in palliative care cancer patients.
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