Norwegian version of this page

Rethinking Cancer Survivorship

Exploring the foundations of research on how humans  experience and voice cancer (CANCUL).

The overall ambition of the project is to develop novel knowledge on the human and social aspects of cancer and cancer survivorship.

Illustrasjonsbilde av is

Photo: "Ice nature" by @Doug88888, Creative Commons

About the project

As the treatment for some types of cancer gradually succeed in saving people’s lives, the number of people identifying themselves as cancer survivors is rapidly growing.

However, there is an under-representation of the biographical disruption, the anxiety, the fatigue, the chaotic and chronic sides of cancer that also come with the disease but remain be socially unacceptable.

Consequently, we believe there is a silent side of contemporary Norwegian cancer culture beyond what is currently most represented, and that this shroud of silence needs to be lifted.

Objectives
The overall ambition of the project is to develop novel knowledge on the human and social aspects of cancer and cancer survivorship. We use various methods such as literature review, in-depth interviews, text-analyses and intervention designing.

Voicing the unspeakable diseases:

Image may contain: Cloud, Sky, Plant, Tree, Natural landscape.

Qualitative interviews with survivors from gyneacological cancer and colorectal cancer.The aim of the interviews is to uncover individual cancer experiences, especially less vocalized aspects of living beyond cancer that are socially and culturally muted.   

 

Photo collection

plakat med utdrag av bilder tatt av kreftoverlevere

Cancer survivors are encouraged to take photos from their everyday life with a specially designed and secure mobile app. The pictures will used according to the research dissemination plan; i.e. in exhibitions, presentations and other visual communication.


Text-based representations of cancer: 

Comparing different textual genres of cancer representations, with a special focus on gynaecological and colorectal cancer. In recent decades, we have registered a striking exposure of personal cancer stories in the public sphere. Fictional and non-fictional genres represent different expressions and illustrate different linguistic techniques and cultural discourses about cancer that we have wanted to investigate further.

Blogs and online texts 

Analysis of written subjective experiences related to cancer and which norms for cancer survival and how they are expressed in textual representations online.  We explore the language used, what expressions and metaphors are used, which themes dominate and what remains silent. Are there any leading scripts? Which voices are not present? Who do the bloggers address, and not least how is the practice legitimized?

Biographies and novels

Analysis of books in which patients and relatives with their own pen tell about their personal experiences with different types of cancer - so-called autopathographies, which also include autobiographies along with novels, essays and poems by authors who have experience with cancer and who use their experiences in writing. What is achieved through applying own experiences in different these types of text?

Creative writing 

We arrange groups in creative writing with patients who have or have had cancer. As an important part of understanding what it means to be a cancer survivor, we have wanted to work with texts and expressions from patients who are not part of the written discourse on cancer. This is done by adding textual material - such as poems, short stories and small fragments - from the writing groups where the idea is that a creative community with attention to writing, text and dialogue, can contribute to other voices and facets of power experiences also being highlighted.

Kreativ skriving

Photo: North.jvta, via Wikimedia Commons
The information about this course is in Norwegian.
Les mer om kurset her


Developing new concepts for capturing cancer experiences and cancer survivorship

Connected with the other sub-projects, with a more ambitious theoretical objective: a critical exploration of the concept of ‘cancer survivorship’, its cultural premises, and new ways of thinking about and practicing health, illness and embodiment that life after cancer might represent. 


Dissemination:

Debate Hva vil det si å erfare kreft? – Dagsavisen 15/09/2020 

KreftcellerPhoto: Colorectal cancer cells, NICHD NIH, Creative Commons 

Are particular social groups left out of contemporary cancer narratives? If this is indeed the case; which groups are we talking about? Kari Nyheim Solbrække and Hilde Bondevik writes in Dagsavisen.

 


Associated Student projects

Student 1

Student 2


Latest publications

Solbrække, Kari Nyheim & Bondevik, Hilde (2021). Kreftoverlevelse på nye måter – om hvordan kreft erfares og omtales. Michael. ISSN 1893-9651. 18(28), s. 157–163.

Frank, Arthur W. & Solbrække, Kari Nyheim (2021). Becoming a Cancer Survivor: An Experiment in Dialogical Health Research. HealthISSN 1363-4593. doi: 10.1177/13634593211005178

Illustrasjon

Photo: "art" by d26b73, Creative Commons


Other Activities

Upcoming Spring 2022: Podcast Kreftkompasset

Kreftkompasset

Seminar Lysebu 2021

Project Kick-off spring 2019 

kick off

Research group Seminar Tromsø January 2020 


Foto: NN


Digital presentations:

Narratives in medicine Scandinavian network, May 2021

Nettsidebilde

Chronic living, March 2021

Konferanseplakat
 

Centre for Medical Humanities, Uppsala University, January 2021


User group meetings

Norwegian patient organisation for colorectal cancers (NORILCO),Nov 2019

Norilco

Norwegian organization for gynaecological cancer, March 2020 

gynkreftforeningen

      


Financing

Cooperation

Start - finish

2018-

 

Publications

Solbrække, Kari Nyheim & Bondevik, Hilde (2021). Kreftoverlevelse på nye måter – om hvordan kreft erfares og omtales. Michael. ISSN 1893-9651. 18(28), s. 157–163.

Frank, Arthur W. & Solbrække, Kari Nyheim (2021). Becoming a Cancer Survivor: An Experiment in Dialogical Health Research. HealthISSN 1363-4593. doi: 10.1177/13634593211005178

Image may contain: White, Light, Black, Standing, Black-and-white.

  • Frank, Arthur W. & Solbrække, Kari Nyheim (2021). Becoming a Cancer Survivor: An Experiment in Dialogical Health Research. Health. ISSN 1363-4593. doi: 10.1177/13634593211005178.

View all works in Cristin

  • Solbrække, Kari Nyheim & Bondevik, Hilde (2021). Rethinking cancer survivorship. Exploring the foundations of research on how humans experience and voice cancer in a Norwegian context.
  • Solbrække, Kari Nyheim & Bondevik, Hilde (2021). Investigating narrative citizenship in the context of cancer.
  • Solbrække, Kari Nyheim (2021). Om autoetnografisk metode. Eksempelfrå egen forsking .
  • Solbrække, Kari Nyheim & Bondevik, Hilde (2020). Hva vil det si å erfare kreft? . Dagsavisen - Nye Meninger.

View all works in Cristin

Published Mar. 25, 2015 3:48 PM - Last modified Jan. 26, 2022 7:54 PM