Vitenskapelige artikler
Ødbehr, L.S., Jensen, A.S., Korup, A., Hov, R., Sanaker, H., & Sandsdalen, T. (2025) Patients' experiences of quality in palliative care and advance care planning in primary care: a qualitative study. BMC Palliat Care 24, 277. https://doi.org/10.1186/s12904-025-01919-8
Brøderud, L., Førde, R., Romøren, M., Klopstad Wahl, A., & Pedersen, R. (2025). Barriers and Facilitators to the Implementation of Advance Care Planning: A Qualitative Study at National and Organizational Levels. J Eval Clin Pract, 31(4), e70131. https://doi.org/10.1111/jep.70131
Festvåg, L. E., Sverre, B. L., Paulsen, O., & Eilertsen, G. (2025). The value of home-based advance care planning in addressing existential concerns among older Norwegian patients with cancer and their relatives: A narrative ethnographic study. Palliat Care Soc Pract, 19. https://doi.org/10.1177/26323524251330658
Hermansen, K. B., Alnes, R. E., Lereim Sævareid, T. J., Pedersen, R., Westbye, S. F., Romøren, M., & Midtbust, M. H. (2025). Raising awareness and preparation for what may come: next of kin experiences of advance care planning with frail, home-dwelling older adults in geriatric units. BMC Health Services Research, 25(1), 454. https://doi.org/10.1186/s12913-025-12609-9
Lunde S.A.E., Røthing M., Hjorth N.E. Primary healthcare physicians’ role in advance care planning in palliative phase in Norway. (2025) Tidsskrift for velferdsforskning,27(4):1-15. https://doi.org/10.18261/tfv.27.4.5
Pedersen J.E., Eide H., Sandsleth M.G., Taylor I., Førsund L.H. Advanced Practice Nurses' Roles and Responsibilities in Advance Care Planning for Older Persons-A Mixed Methods Systematic Review. J Adv Nurs. 2025 Feb 2.https://doi.org/10.1111/jan.16780
Ødbehr L.S., Hov R., Sanaker H., Sandsdalen T. Physicians’ Perceptions of the Quality of Palliative Care and of the Importance of Collaboration in Interdisciplinary Teams in Norwegian Nursing Homes. J Multidiscip Healthc. 2025;18:395-406. https://doi.org/10.2147/JMDH.S487153
Driller, B., Maienborn, C., Aasen, E. M., Kolstrøm, A., Talseth-Palmer, B., Hole, T., Strømskag, K. E., & Brenne, A.-T. (2024). Normality and compassionate care: experiences from advanced cancer patients in their last time at home. BMC Prim Care, 25(1), 245-211. https://doi.org/10.1186/s12875-024-02499-x
Driller, B., Talseth-Palmer, B., Hole, T., Strømskag, K. E., & Brenne, A.-T. (2024). Cancer patients have a reduced likelihood of dying in hospital with advance care planning in primary health care and a summarizing palliative plan: a prospective controlled non-randomized intervention trial. Scand J Prim Health Care, 42(3), 471-482. https://doi.org/https://doi.org/10.1080/02813432.2024.2346131
Festvåg, L. E., Sverre, B. L., Paulsen, Ø., & Eilertsen, G. (2024). Advance care planning with older Norwegian adults in their homes: a narrative ethnographic study. BMC Palliat Care, 23(1), 44-44. https://doi.org/https://doi.org/10.1186/s12904-024-01378-7
Ihle-Hansen, H., Pedersen, R., Westbye, S. F., Sævareid, T. J. L., Brøderud, L., Larsen, M. H., Hermansen, K., Rostoft, S., & Romøren, M. (2024). Patient preferences in geriatric wards, a survey of health care professionals’ practice, experience and attitudes. Eur Geriatr Med, 15(1), 153-158. https://doi.org/https://doi.org/10.1007/s41999-023-00922-7
Olsen, L. B., Halvorsrud, L., Anker-Hansen, C., Grøndahl, V. A., Helgesen, A. K., Bååth, C., Johansen, H., & Rummelhoff, G. (2024). Forhåndssamtaler i sykehjem for personer med demens – en intervjustudie. Nordisk sygeplejeforskning, 14(3), 1-16. https://doi.org/https://doi.org/10.18261/nsf.14.3.4
Romøren, M., Hermansen, K. B., Sævareid, T. J. L., Brøderud, L., Westbye, S. F., Wahl, A. K., Thoresen, L., Rostoft, S., Førde, R., Ahmed, M., Aas, E., Midtbust, M. H., & Pedersen, R. (2024). Implementation of advance care planning in the routine care for acutely admitted patients in geriatric units: protocol for a cluster randomized controlled trial. BMC Health Serv Res, 24(1), 220-220. https://doi.org/https://doi.org/10.1186/s12913-024-10666-0
Ødbehr, L., Hov, R., Sanaker, H., Jensen, Å. S., Korup, A., & Sandsdalen, T. (2024). Physicians' understandings and experience of advance care planning in Norwegian nursing homes: a qualitative study. BMC Palliat Care, 23(1), 158-110. https://doi.org/https://doi.org/10.1186/s12904-024-01481-9
Kolstrøm, A., Driller, B., & Aasen, E. M. (2023). From difficulty to meaning – Experiences of patients with advanced cancer having advance care planning conversations and a palliative care plan. European journal of oncology nursing : the official journal of European Oncology Nursing Society, 67, 102456-102456. https://doi.org/https://doi.org/10.1016/j.ejon.2023.102456
Sævareid, T. J. L., Aasmul, I., & Hjorth, N. E. (2023). Implementation of Advance Care Planning in Norway. Z Evid Fortbild Qual Gesundhwes, 180, 163-167. https://doi.org/https://doi.org/10.1016/j.zefq.2023.05.017
Westbye, S. F., Rostoft, S., Romøren, M., Thoresen, L., Wahl, A. K., & Pedersen, R. (2023). Barriers and facilitators to implementing advance care planning in naïve contexts - where to look when plowing new terrain? BMC Geriatr, 23(1), 387-387. https://doi.org/https://doi.org/10.1186/s12877-023-04060-4
Driller, B., Talseth‑Palmer, B., Hole, T., Strømskag, K.E. & Brenne, A.T. (2022). Cancer patients spend more time at home and more often die at home with advance care planning conversations in primary health care: A retrospective observational cohort study. BMC Palliative Care, 21(61). doi: https://doi.org/10.1186/s12904-022-00952-1
Sævareid, T. J. L., Pedersen, R., & Magelssen, M. (2021). Positive attitudes to advance care planning – a Norwegian general population survey. BMC Health Services Research, 21(1). https://doi.org/https://doi.org/10.1186/s12913-021-06773-x
Hjorth, N.E., Hufthammer, K.O., Sigurdardottir, K., Tripodoro, V.A., Goldraij, G., Kvikstad, A., Haugen, D.F., on behalf of the ERANet-LAC CODE project group. (2021). Hospital care for the dying patient with cancer: does an advance care planning invitation influence bereaved relatives’ experiences? A two-country survey. BMJ Supportive & Palliative Care. doi: http://dx.doi.org/10.1136/bmjspcare-2021-003116
Hjorth, N.E., Schaufel, M.A., Sigurdardottir, K.R., & Haugen, D.R.F. (2020). Feasibility and acceptability of introducing advance care planning on a thoracic medicine inpatient ward: an exploratory mixed method study. BMJ Open Respiratory Research, 7(1). doi: 10.1136/bmjresp-2019-000485
Eldre artikler
Husebo, B. S., Ballard, C., Aarsland, D., Selbaek, G., Slettebo, D. D., Gulla, C., Flo, E. (2019). The Effect of a Multicomponent Intervention on Quality of Life in Residents of Nursing Homes: A Randomized Controlled Trial (COSMOS). J Am Med Dir Assoc, 20(3), 330-339. doi:10.1016/j.jamda.2018.11.006
Sævareid, T. J. L., Førde, R., Thoresen, L., Lillemoen, L., & Pedersen, R. (2019). Significance of advance care planning in nursing homes: Views from patients with cognitive impairment, their next of kin, health personnel and managers. Clin Interv Aging, 14, 997-1005. doi:https://doi.org/10.2147/CIA.S203298
Sævareid, T. J. L., Thoresen, L., Gjerberg, E., Lillemoen, L., & Pedersen, R. (2019). Improved patient participation through advance care planning in nursing homes-A cluster randomized clinical trial. Patient Educ Couns, 102(12), 2183-2191. doi:https://doi.org/10.1016/j.pec.2019.06.001
Aasmul, I., Husebo, B.S., Sampson, E.L., & Flo, E. (2018). Advance Care Planning in Nursing Homes – Improving the Communication Among Patient, Family, and Staff: Results From a Cluster Randomized Controlled Trial (COSMOS). Front. Psychol., 9(2284). doi: https://doi.org/10.3389/fpsyg.2018.02284
Aasmul, I., Husebo, B. S., & Flo, E. (2018). Description of an advance care planning intervention in nursing homes: outcomes of the process evaluation. BMC geriatrics, 18(1), 26. doi:10.1186/s12877-018-0713-7
Hjorth, N. E., Haugen, D. F., & Schaufel, M. A. (2018). Advance care planning in life-threatening pulmonary disease: a focus group study. ERJ Open Res, 1-9. doi:10.1183/23120541.00101-2017
Sævareid, T. J. L., Lillemoen, L., Thoresen, L., Førde, R., Gjerberg, E., & Pedersen, R. (2018). Implementing advance care planning in nursing homes – study protocol of a cluster-randomized clinical trial. BMC Geriatrics, 18(1), 180. doi:https://doi.org/10.1186/s12877-018-0869-1
Bollig, G., Gjengedal, E., & Rosland, J. H. (2016). They know!-Do they? A qualitative study of residents and relatives views on advance care planning, end-of-life care, and decision-making in nursing homes. Palliat Med, 30(5), 456-470. doi:10.1177/0269216315605753
Flo, E., Husebo, B. S., Bruusgaard, P., Gjerberg, E., Thoresen, L., Lillemoen, L., & Pedersen, R. (2016). A review of the implementation and research strategies of advance care planning in nursing homes. BMC Geriatr, 16. doi:https://doi.org/10.1186/s12877-016-0179-4
Thoresen, L., Ahlzén, R., & Solbrække, K. N. (2016). Advance Care Planning in Norwegian nursing homes—Who is it for? J Aging Stud, 38, 16-26. doi:https://doi.org/10.1016/j.jaging.2016.04.003
Thoresen, L., & Lillemoen, L. (2016). "I just think that we should be informed" a qualitative study of family involvement in advance care planning in nursing homes. BMC Med Ethics, 17(1), 72. doi:https://doi.org/10.1186/s12910-016-0156-7
Friis, P., & Førde, R. (2015). Forhåndssamtaler med geriatriske pasienter. Tidsskrift for Den Norske Laegeforening, 135(3), 233-235.
Husebo, B. S., Flo, E., Aarsland, D., Selbaek, G., Testad, I., Gulla, C., . . . Ballard, C. (2015). COSMOS--improving the quality of life in nursing home patients: protocol for an effectiveness-implementation cluster randomized clinical hybrid trial. Implement Sci, 10, 131. doi:10.1186/s13012-015-0310-5
Skår, Å., Juvet, L. K., Smedslund, G., Bahus, M. K., Pedersen, R., Fure, B., & Nasjonalt kunnskapssenter for, h. (2014). Livets sluttfase - om å finne passende behandlingsnivå og behandlingsintensitet for alvorlig syke og dødende. In (Vol. nr 18-2014). Oslo: Kunnskapssenteret.
Ph.d.-avhandlinger
Driller, B. (2024). Enhancing Palliative Care in Primary Healthcare for Patients with Cancer: Integrating Advance Care Planning to Support Home-Based Care at the End-of-Life. Fakultet for medisin og helsevitenskap, NTNU. https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/3152628
Hjorth, N.E. (2022). End-of-life care: Patients’ preferences and relatives’ experiences, with focus on communication and advance care planning. Kompetansesenter i lindrande behandling, Region vest, Helse Bergen HF. Klinisk institutt K1, Universitetet i Bergen. https://hdl.handle.net/11250/2996437
Aasmul, I. (2020). Advance Care Planning and the staff perspective: The development, implementation, and investigation of a complex intervention in the nursing home. Senter for alders- og sykehjemsmedisin, Institutt for global helse og samfunnsmedisin, Universitetet i Bergen. bora.uib.no/handle/1956/21785
Sævareid, T. J. L. (2019). Advance care planning in nursing homes – A mixed methods study of a complex intervention using a whole-ward approach. Senter for medisinsk etikk, Institutt for helse og samfunn, Universitetet i Oslo. www.duo.uio.no/handle/10852/70654
Fagartikler
Sævareid, T.J.L. & Pedersen, R. (2020). Forhåndssamtaler - et forsøk på å se enkeltmennesket. Omsorg: Nordisk tidsskrift for Palliativ Medisin. ISSN 0800-7489. 37(2), 5- 9.
Hjorth, N. E. (2019) Forhåndssamtaler - hvem trenger dem? Omsorg, nr. 1, 2019
Aasmul, I. (2018). Advance care planning. An essential communication process in nursing homes. [Advance care planning / forhåndssamtaler. En nödvendig kommunikasjonsprosess i sykehjem]. Omsorg, 35(4), 40-45.
Jensen, Å. S., & Holen, I. G. (2018). Forhåndssamtaler for eldre med demens. "Palliasjon i tidig fase for personer med demens i kommunalhelsetjenesten, Stange kommune" - kompetensehevende tiltak for helsepersonell innen palliasjon og demens. Omsorg, 35(4), 30-34.
Thoresen, L. (2018). Advance care planning and dementia - possibilities and challenges. [Forhåndssamtaler og demens - muligheter og utfordringer]. Omsorg, 35(4), 46-50.
Friis, P., & Förde, R. (2017). Advance care planning. [Forhåndssamtaler = advance care planning]. Tidsskrift for Den Norske Legeforening, 137(6), 462. doi: https://doi.org/10.4045/tidsskr.16.1049
Gjerberg, E., Lillemoen, L., Weaver, K., Pedersen, R., & Førde, R. (2017). Forberedende samtaler i norske sykehjem. Tidsskrift for Den Norske Legeforening, 137(6), 447-450. doi:https://doi.org/10.4045/tidsskr.16.0284
Forhåndssamtaler i media
Dødsviktige samtaler. Vårt Land. Publisert 17.02.24
Palliasjon: Forskning i primærhelsetjenesten må til. Dagens Medisin. Publisert 26.08.20
Ingen taushetsplikt om døden. VG. Publisert 26.06.20
Forhåndssamtaler på sykehjem. Sykepleien. Publisert 19.05.20
Kan vi forberede oss på døden? Dagsavisen. Publisert 30.03.20
De viktige samtalene om livets slutt må tas på forhånd. Helsefagarbeideren. 3, 2020.
Eldre på sykehjemmet var ikke så opptatt av døden. Ambulanseforum. Publisert 07.11.19
Eldre på sykehjemmet var ikke så opptatt av døden. Forskning.no. Publisert 04.11.19
Kva er viktig for deg i sluttfasen av livet? Forskersonen.no. Publisert 02.06.19
Forberedende samtaler mellom ansatte og pasienter gjorde livet bedre på sykehjemmet. Forskning.no/Universitetet i Bergen. Publisert 02.02.19
Én pasient – to verdener. Dagens Medisin. Publisert 18.03.17
Forhåndssamtaler om behandling mot livets slutt. Fædrelandsvennen. Publisert 16.04.15
Eldre pasienter vil ha forhåndssamtaler med legen. VG. Publisert 10.02.15
Eldre pasienter vil ha forhåndssamtaler med legen. NRK. Publisert 10.02.15
Podkaster
On Death, Life and Palliative Care with Christiaan Rhodius. Stories Lived. Stories Told. Publisert 05.02.25