Siste publikasjoner - Avdeling for tverrfaglig helsevitenskap

• Skøyeneie, Sigrid Cecilie Tinglum; Fauske, Lena; Wik, Hilde Skuterud; Tjønnfjord, Geir Erland; Gedde-Dahl, Tobias & Myhre, Anders Eivind (2025). Patients’ Experiences With Hospital at Home Following Allogenic Hematopoietic Stem Cell Transplantation: A Qualitative Study. Cancer Nursing. ISSN 0162-220X. doi: 10.1097/NCC.0000000000001504. Fulltekst i vitenarkiv Vis sammendrag

  Background Hospital at Home (HaH) models aim to deliver hospital-level care to patients in a home setting. In the context of allogeneic hematopoietic stem cell transplantation (HSCT), HaH is intended to improve patients’ quality of life and reduce symptom burden. However, limited research exists on patients’ perceptions of this innovative care model. Objective This study aimed to explore how patients experienced HaH following HSCT. Methods A qualitative exploratory research design was employed, utilizing semistructured individual interviews. Sixteen patients who received HaH care following HSCT were interviewed. Reflexive thematic analysis was used to identify themes representing patterns of meaning across the dataset. Results The following 3 themes were identified: (1) actively working through the illness experience: participants needed to engage in active coping mechanisms, emphasizing the crucial role of their informal caregivers, (2) recognition of normality in the illness situation: experiencing autonomy and living in a homelike environment enhanced their sense of normality, and (3) fundamental aspects of daily life that promote recovery: psychological and emotional benefits of the private setting, including improved rest, calmness, relaxation, increased physical activity, and the opportunities to engage in familiar daily activities, facilitated recovery in ways that differed from the traditional hospital setting. Conclusion This study suggests that HaH positively influences recovery and well-being among HSCT patients and has the potential to improve patient outcomes. Implications for Practice HaH offers a viable alternative to traditional hospitalization, promoting a more personalized approach to care.

• Skøyeneie, Sigrid Cecilie Tinglum; Wik, Hilde Skuterud; Tjønnfjord, Geir Erland; Fauske, Lena; Gedde-Dahl, Tobias & Solvang, Grethe [Vis alle 7 forfattere av denne artikkelen] (2025). Perceptions of safety in hospital at home following allogeneic haematopoietic stem cell transplantation: A qualitative study. European Journal of Oncology Nursing. ISSN 1462-3889. 80. doi: 10.1016/j.ejon.2025.103044. Fulltekst i vitenarkiv
• Olabintan, Olaolu; Halvorsen, Natalie Grace Mosteiro; Baddeley, Robin; Kudo, Shin Ei; Barua, Ishita & Misawa, Masashi [Vis alle 21 forfattere av denne artikkelen] (2025). Environmental impact of computer-aided diagnosis in colonoscopy: A carbon footprint assessment of a prospective study cohort. Endoscopy. ISSN 0013-726X. 58(03), s. 303–309. doi: 10.1055/a-2717-8365. Fulltekst i vitenarkiv Vis sammendrag

  Background The environmental impact of computer-aided diagnosis (CADx) in colonoscopy is unknown. The potential to reduce greenhouse gas emissions by limiting unnecessary polypectomies may be offset by emissions associated with CADx devices. We quantified and compared the carbon footprint of colonoscopy with and without CADx. Methods Life-cycle carbon emissions associated with endoscopic snares, polyp traps, histopathology, and CADx devices were estimated using life-cycle assessment software. The effect of CADx was estimated by the carbon dioxide equivalent (CO2e) emissions related to outcomes from a prospective cohort of patients who underwent colonoscopy with optical diagnosis under a leave-in-situ strategy (i.e. rectosigmoid polyps ≤5 mm predicted as non-neoplastic were not removed) with and without CADx assistance. Results We analyzed 1134 individuals (median age 67 years, 59% male) with 1716 colorectal polyps. Colonoscopy with CADx reduced the number of snares and polyp traps from 567 to 543 (difference: 24) and histopathology submissions from 1343 to 1278 (difference: 65). However, the total carbon footprint increased from 832 kg CO2e (95%CI 815 to 847) without CADx to 946 kg CO2e (95%CI 927 to 965) with CADx, corresponding to an absolute increase of 114 kg CO2e (95%CI 80 to 150) or 0.10 kg CO2e per colonoscopy. Conclusion Using CADx under a leave-in-situ strategy increased the environmental burden of colonoscopy.

• Tschamper, Merete Kristin Bustetun; Wahl, Astrid Klopstad; Jakobsen, Rita & Larsen, Marie Hamilton (2025). Meeting Parents' Health Literacy Needs—Designing and Feasibility Testing of a Three-Step Intervention in the Childhood Epilepsy Context. Journal of Clinical Nursing (JCN). ISSN 0962-1067. doi: 10.1111/jocn.17652. Fulltekst i vitenarkiv
• Fossmo, Hanne Ludt; Ørstavik, Kristin; Gurandsrud, Aagot; Frich, Jan C & Robinson, Hilde Stendal (2025). Rehabilitation technology in assessment and treatment of arm and hand function in Myotonic Dystrophy type 1: a single subject experimental design study. Journal of Neuromuscular Diseases. ISSN 2214-3599. 13(1), s. 1–12. doi: 10.1177/22143602241301675. Fulltekst i vitenarkiv Vis sammendrag

  Background: Myotonic Dystrophy type 1 (DM1) is a slowly progressive hereditary neuromuscular disorder affecting several organ systems including the musculoskeletal system. Objective: To examine the effects of rehabilitation technology on arm and hand function in the assessment and treatment of adults with DM1 with moderate to severe muscle impairment. Methods: A single subject experimental design study (SSED) with 6 participants. The assessments were done weekly through remote study assessments using the video-conference system Whereby®. Participants performed the nine-hole peg test (NHPT), active range of motion (AROM) of the shoulder and patient reported outcome measures (PROMS). Three participants also measured grip and pinch strength and performed the Nut and Bolt task. The intervention was a three-week in-patient rehabilitation stay with the use of rehabilitation technology for exercising arm and hand function. Exercises were performed in AMADEO and the ArmeoSenso. The participants exercised the upper extremities for 30 min 5 times a week. Results: Improvement on the NHPT test on the dominant hand were found for five of the six participants. Three of six improved on the non-dominant hand and in AROM. Two of the three participants that measured pinch and grip strength improved, and all three improved on the Nut and Bolt task. Self- reported function, myotonia and fatigue remained stable. All participants were able to participate in video assessments. Conclusions: Impairment in arm- and hand function affects independence in people with DM1.Our findings suggest that exercising arm- and hand using rehabilitation technology may have a positive effect on function measured by dexterity, strength, and movement in DM1. There is a need to study the effect of exercise on arm- and hand function in DM1 in larger studies. The use of video-consultations can be a supplement in assessment of people with neuromuscular conditions in research and clinical practise.

• Solli, Kristin Klemmetsby; Benth, Jurate Saltyte; Digranes, Linn Camilla Wergeland; Holtan, Line; Kunøe, Nikolaj & Tanum, Lars Håkon Reiestad (2025). Changes in mental health during long-term treatment with extended-release naltrexone: A 3-year clinical study of opioid dependent individuals. Contemporary Clinical Trials. ISSN 1551-7144. 152. doi: 10.1016/j.cct.2025.107861. Fulltekst i vitenarkiv
• Krawczyk, Marian; Solbrække, Kari Nyheim & Thoresen, Lisbeth (2025). Extending the concept of total pain to cancer survivorship. Frontiers in Sociology. 9. doi: 10.3389/fsoc.2024.1387096. Fulltekst i vitenarkiv Vis sammendrag

  More people are surviving cancer than ever before. While there is a growing body of research on quality of life in cancer survivorship, we still do not have a good understanding of the lived complexities that many people experience after successful treatment. Inspired by the literature on existential concerns in cancer survivorship, we consider how the concept of ‘total pain’, which emerged from the contemporary hospice movement, may be useful to think about experiences of suffering in cancer survivorship, using interviews from a Norwegian research project Rethinking Cancer Survivorship. We find that the concept of total pain encapsulates concerns for existential suffering and also has unique features which offer new forms of understanding and action. This includes its origins within cancer care; how it addresses the individual as a whole and re-centres the body; its reliance on and recognition of the limits of narrative; how it attends to relationality; and how the concept may afford unique insights for service development. Dying from cancer and surviving cancer are different processes, but total pain can serve as a useful conceptual compass to orient our understandings of those who experience this illness, regardless of disease outcome

• Skøyeneie, Sigrid Cecilie Tinglum; Wik, Hilde Skuterud; Tjønnfjord, Geir Erland; Fauske, Lena; Gedde-Dahl, Tobias & Myhre, Anders Eivind (2025). Family Caregivers’ Experiences of Hospital at Home Following Allogeneic Haematopoietic Stem Cell Transplantation: A Qualitative Study. European Journal of Cancer Care. ISSN 0961-5423. 2025(1). doi: 10.1155/ecc/7043910. Fulltekst i vitenarkiv Vis sammendrag

  Purpose: The use of Hospital at Home (HaH) is expanding globally, including in the context of allogeneic haematopoietic stem cell transplantation (HSCT), as an innovative care model that delivers hospital-equivalent care to patients in a home setting. The HaH model designed for HSCT relies on informal caregivers, such as next of kin or friends. Given the limited research on caregivers’ perceptions of HaH, this study aimed to explore how informal caregivers of patients undergoing HSCT experienced HaH. Method: Using a phenomenological interpretive approach, semistructured individual interviews were conducted with 14 family caregivers. Data were analysed using reflexive thematic analysis. Results: The analysis identified three themes: (1) On the inside as a caregiver, (2) Variation in caregiver burden and (3) Appreciating normality. Caregivers valued the opportunity to be physically present and involved in caring for the patient during HSCT. Although most had to undertake an active caregiving role, they reported varying levels of involvement and distress. Caregivers also highlighted the sensation of normality that HaH fostered, emphasising that maintaining a familiar routine in the home setting was less exhausting than traditional hospital care. Conclusion: This study found that family caregivers appreciated being physically present in HaH, experiencing a sensation of being ‘on the inside’ and closely sharing the patient’s treatment journey, in contrast to during hospitalisation. The findings revealed diverse experiences of caregiving and associated distress, underscoring the importance of adequately preparing caregivers for their role and ensuring appropriate support.

• Synnes, Oddgeir Arne & Bondevik, Hilde (2024). Repair and Re-enchantment: Reading and Writing Cancer. I Rasmussen, Anders Juhl & Sodemann, Morten (Red.), Narrative Medicine: Trauma and Ethics. Vernon Press. ISSN 9781648898457. s. 91–101. Fulltekst i vitenarkiv
• Sjetne, Ingeborg Strømseng & Lerdal, Anners (2024). Sykepleieres arbeidsbetingelser, pasientsikkerhet og kvalitet – sekundæranalyse av tverrsnittsdata. Sykepleien Forskning. ISSN 1890-2936. 19. doi: 10.4220/Sykepleienf.2024.95607. Fulltekst i vitenarkiv
• Kvaale, Kaja; Synnes, Oddgeir Arne; Lian, Olaug Synnøve & Bondevik, Hilde (2024). “That bastard chose me”: the use of metaphor in women’s cancer blogs. Qualitative Research in Medicine & Healthcare. 8(2). doi: 10.4081/qrmh.2024.11908. Fulltekst i vitenarkiv Vis sammendrag

  ABSTRACT Metaphors play a significant role in how cancer is experienced and discussed. This study delves into the utilization of metaphors by women bloggers grappling with colorectal and gynecological cancers. By focusing on cancer types less represented in mainstream media, we aim to shed light on cancer cultures associated with body areas often considered taboo. Our findings reveal that widely rec- ognized expressions and stories about cancer, such as the metaphors of battle and narratives promoting optimism and heroism in the face of illness, are deeply ingrained. However, a notable discovery is the prevalence of personification alongside these conventional expressions. Personifying cancer endows it with human characteristics, providing an outlet for bloggers to express their fear and frustration, including articulating feelings of sadness and anger, diverging from narratives centered on heroism and positive thinking. Furthermore, our analysis reveals a significant emphasis on death, underscoring that despite advancements in treatment, bloggers still perceive cancer as highly lethal. Personification can serve both detrimental and therapeutic purposes for bloggers and for societal perceptions of cancer survivorship, both reinforcing and opposing dominant Western discourses sur- rounding the illness. These findings enrich our understanding of cognitive and cultural tools used to describe cancer within contemporary Western society.

• Fauske, Lena & Bondevik, Hilde (2024). Kreftoverlevelse – hva ligger i begrepet, og hvem favner det? I Solbrække, Kari Nyheim & Bondevik, Hilde (Red.), Kreftoverlevelse på nye måter. Scandinavian Academic Press . ISSN 9788230403310. s. 31–57. Fulltekst i vitenarkiv Vis sammendrag

  I dagens Norge er det mer enn 300 000 personer som har hatt kreft, eller som lever med kreftsykdom. Kunnskapen om de sosiale og personlige sidene ved det å overleve en kreftsykdom er likevel begrenset, noe denne boka tar opp i bred forstand. Vekker alle former for kreft, bivirkninger av behandlingen eller senvirkninger like mye empati? Hvilket språk er tilgjengelige for dem som rammes? Hvem setter dagsorden for hvordan sykdom generelt, og kreft spesielt, tas opp offentlig? Hvilke stemmer blir hørt? Og hvordan kan kreftoverlevere i større grad forstås og møtes på egne premisser? I denne antologien undersøker forskere med ulik fagbakgrunn hvordan det erfares å få kreft, og hvordan disse erfaringene er knyttet til storsamfunnets forestillinger om kreft og kreftoverlevelse. På film, i blogger og andre personlige beretninger beskrives ofte kreftoverleveren som en helt. På hvilken måte påvirker dette idealet om heroisme mennesker som lever med – og har levd med – kreft? Boka tar særlig for seg erfaringer med gynekologisk kreft, kolorektal kreft og lungekreft, kreftformer som har vært lite synlige i dagens kulturelle offentlighet. Den bygger på nyskapende forskning og vil være interessant for alle som er i berøring med kreft, også helsepersonell.

• Bondevik, Hilde & Synnes, Oddgeir (2024). Å artikulere kreftoverlevelse gjennom poetisk språk. I Solbrække, Kari Nyheim & Bondevik, Hilde (Red.), Kreftoverlevelse på nye måter. Scandinavian Academic Press . ISSN 9788230403310. s. 191–215. Fulltekst i vitenarkiv Vis sammendrag

  I dagens Norge er det mer enn 300 000 personer som har hatt kreft, eller som lever med kreftsykdom. Kunnskapen om de sosiale og personlige sidene ved det å overleve en kreftsykdom er likevel begrenset, noe denne boka tar opp i bred forstand. Vekker alle former for kreft, bivirkninger av behandlingen eller senvirkninger like mye empati? Hvilket språk er tilgjengelige for dem som rammes? Hvem setter dagsorden for hvordan sykdom generelt, og kreft spesielt, tas opp offentlig? Hvilke stemmer blir hørt? Og hvordan kan kreftoverlevere i større grad forstås og møtes på egne premisser? I denne antologien undersøker forskere med ulik fagbakgrunn hvordan det erfares å få kreft, og hvordan disse erfaringene er knyttet til storsamfunnets forestillinger om kreft og kreftoverlevelse. På film, i blogger og andre personlige beretninger beskrives ofte kreftoverleveren som en helt. På hvilken måte påvirker dette idealet om heroisme mennesker som lever med – og har levd med – kreft? Boka tar særlig for seg erfaringer med gynekologisk kreft, kolorektal kreft og lungekreft, kreftformer som har vært lite synlige i dagens kulturelle offentlighet. Den bygger på nyskapende forskning og vil være interessant for alle som er i berøring med kreft, også helsepersonell.

• Hansen, Bo Lars Thorvald Terning; Nygård, Mari Kiens; Castle, Phil E.; Burger, Emily Annika & Aasbø, Gunvor (2024). Sociodemographic characteristics associated with cervical cancer screening participation by send-to-all and opt-in HPV self-sampling: Who benefits? Results from a randomized controlled trial among long-term non-attending women in Norway. International Journal of Cancer. ISSN 0020-7136. 155(6), s. 1053–1067. doi: 10.1002/ijc.34989. Fulltekst i vitenarkiv
• Mediå, Line Merete; Fauske, Lena; Sigurdardottir, Solrun; Feragen, Kristin Judith Billaud & Wæhre, Anne (2024). Differences of sex development and surgical decisions: focus group interviews with health care professionals in Norway. Health Psychology and Behavioral Medicine. 12(1), s. 1–19. doi: 10.1080/21642850.2024.2371134. Fulltekst i vitenarkiv Vis sammendrag

  Background: Differences of Sex Development (DSD) are congenital conditions where the chromosomal, gonadal and anatomical sex characteristics do not strictly belong to male or female categories, or that belong to both at the same time. Surgical interventions for individuals with DSD remain controversial, among affected individuals, caregivers, and health-care providers. A lack of evidence in support of, for deferring, or for avoiding surgery complicates the decision-making process. This study explores Norwegian health-care professionals’ (HCPs) perspectives on decision-making in DSD-related surgeries and the dilemmas they are facing in this process. Methods: Focus group interviews with 14 HCPs integrated into or collaborating with multidisciplinary DSD teams were analyzed using reflexive thematic analysis. Results: Two overarching dilemmas shed light on the intricate considerations and challenges that HCPs encounter when guiding affected individuals and caregivers through surgical decision-making processes in the context of DSD. The first theme describes how shared decision-making was found to be influenced by fear of stigma and balancing the interplay between concepts of normality, personal experiences and external expectations when navigating the child’s and caregivers’ needs. The second theme illuminated dilemmas due to a lack of evidence-based practice. The core concepts within each theme were the dilemmas health-care professionals face during consultations with caregivers and affected individuals. Conclusion: HCPs were aware of the controversies with DSD-related surgeries. However, they struggled to reconcile knowledge with parents’ wishes for surgery and faced dilemmas making decisions in the best interests of the child. This study draws attention to the benefits of increased knowledge on the consequences of performing or withholding surgery as well as incorporating tools enabling shared decision-making between HCPs and affected individuals/caregivers.

• Olsen, Unni Solveig Johansen; Sellevold, Vibeke Bull; Gay, Caryl; Aamodt, Arild; Lerdal, Anners & Småstuen, Milada Cvancarova [Vis alle 8 forfattere av denne artikkelen] (2024). Factors associated with pain and functional impairment five years after total knee arthroplasty: a prospective observational study. BMC Musculoskeletal Disorders. 25(1). doi: 10.1186/s12891-023-07125-y. Fulltekst i vitenarkiv Vis sammendrag

  Background Few studies have evaluated the associations between preoperative factors and pain and physical function outcomes after total knee arthroplasty (TKA) from a mid-term perspective. Identification of such factors is important for optimizing outcomes following surgery. Thus, we examined the associations between selected preoperative factors and moderate to severe pain and pain-related functional impairment as measured using the Brief Pain Inventory (BPI), five years after TKA in patients with knee osteoarthritis. Methods In this prospective observational study, all patients scheduled for primary unilateral TKA for osteoarthritis were consecutively recruited. Preoperative factors identified from previous meta-analyses were included to assess their associations with pain severity and pain-related functional impairment five years after TKA. Pain severity was the primary outcome, while pain-related functional impairment was the secondary outcome. The BPI was used to evaluate outcomes five years post-TKA. Statistically significant factors from univariate regressions were entered into a multiple logistic regression model to identify those with the strongest associations with pain severity or pain-related functional impairment five years after TKA. Results A total of 136 patients were included, with a mean age of 67.7 years (SD 9.2) and a majority being female (68%). More severe preoperative pain (OR = 1.34, 95% CI [1.03 to 1.74]), more painful sites (OR = 1.28., 95% CI [1.01 to 1.63]), and more severe anxiety symptoms (OR = 1.14., 95% CI [1.01 to 1.28]) were associated with increased likelihood of moderate to severe pain five years after TKA surgery, while more severe osteoarthritis (OR = 0.13, 95% CI [0.03 to 0.61]) was associated with reduced likelihood of moderate to severe pain five years after TKA. More severe anxiety symptoms (OR = 1.25, 95% CI [1.08 to 1.46]) were also associated with increased likelihood of moderate to severe pain- related functional impairment five years after surgery, while male sex (OR = 0.23, 95% CI [0.05 to 0.98]) was associated with reduced likelihood of pain-related functional impairment five years after surgery. Conclusion The identified preoperative factors should be included in larger prognostic studies evaluating the associations between preoperative factors and mid-term pain severity and physical function outcomes after TKA surgery.

• Vidnes, Tone Karine; Wahl, Astrid Klopstad; Larsen, Marie Hamilton; Meyer, Käthe Birgitte; Engebretsen, Eivind & Hermansen, Åsmund [Vis alle 10 forfattere av denne artikkelen] (2024). Effectiveness of a health communication intervention on health literacy in the first year following kidney transplantation – A randomized controlled study. Patient Education and Counseling. ISSN 0738-3991. 123. doi: 10.1016/j.pec.2024.108207. Fulltekst i vitenarkiv Vis sammendrag

  Objective: This study aimed to evaluate the effect of a new health communication intervention focusing on knowledge management skills on health literacy and medication adherence during the first year following kidney transplantation. Methods: We randomized 195 patients during 2020–2021, to either intervention- or control group. Questionnaires were completed at baseline and at 12 months post-transplantation with a 12-month response rate of 84%. Health literacy was measured by the multidimensional Health Literacy Questionnaire (HLQ) instrument. Medication adherence was measured by the self-reported questionnaire (BAASIS©). Results: Results showed that the intervention group had a significant increase in 2 HLQ domains compared to the control group capturing the “ability to appraise health information” Domain 5, (p-value = 0.002) and the “ability to navigate the healthcare system” Domain 7, (p-value <0.04). The effect sizes of SRM were 0.49 (Domain 5) and 0.33 (Domain 7). Medication adherence was comparable in the groups at any measure points. Conclusions: This study contributes to important knowledge about how a health communication intervention focusing on knowledge translation using motivational interviewing techniques positively strengthens health literacy in kidney transplant recipients. Practical implications: Current patient education practice may benefit from focusing on knowledge translation in combination with motivational interview technique.

• Aurén-Møkleby, Eva Margareta; Aasbø, Gunvor; Fredheim, Olav Magnus Søndenå; Mengshoel, Anne Marit; Solbrække, Kari Nyheim & Thoresen, Lisbeth (2024). “It turned out right for both of us”: A qualitative study about a preference for home death and actual place of death. Death Studies. ISSN 0748-1187. doi: 10.1080/07481187.2024.2369847. Fulltekst i vitenarkiv Vis sammendrag

  This qualitative study was conducted in Norway to explore couples’ preference for home death when one of the partners was dying from cancer, and what made home death possible or not. We conducted dyad interviews with five couples. After the patients’ death, the spouses participated in individual interviews. The data were interpreted using thematic narrative analysis. One patient died at home, and three died in a healthcare institution. The narratives show how interdependency and mutual care were important when dealing with home death. When care needs were manageable at home, home was perceived a safe place and the preferred place for death. When care needs were experienced to become unmanageable at home, the sense of safety changed and admission to a health care institution was considered the best option. Regardless of place of death, the spouses experienced the end to have turned out right for their partner and themselves.

• Trier, Ellen Marie Lykke; Synnes, Oddgeir & Thoresen, Lisbeth (2024). Fysiske omgivelsers betydning for pårørende i palliative enheter: en foto-elisiteringsstudie. Nordisk sygeplejeforskning. ISSN 1892-2678. 14(2-2024), s. 1–18. doi: 10.18261/nsf.14.2.3. Fulltekst i vitenarkiv
• Monsen, Ragnhild Elisabeth; Lerdal, Anners; Nordgarden, Hilde; Gay, Caryl & Herlofson, Bente Brokstad (2024). A comparison of the prevalence of dry mouth and other symptoms using two different versions of the Edmonton Symptom Assessment System on an inpatient palliative care unit. BMC Palliative Care. 23(1). doi: 10.1186/s12904-024-01405-7. Fulltekst i vitenarkiv Vis sammendrag

  Background Symptom assessment is key to effective symptom management and palliative care for patients with advanced cancer. Symptom prevalence and severity estimates vary widely, possibly dependent on the assessment tool used. Are symptoms specifically asked about or must the patients add them as additional symptoms? This study compared the prevalence and severity of patient-reported symptoms in two different versions of a multi-symptom assessment tool. In one version, three symptoms dry mouth, constipation, sleep problems were among those systematically assessed, while in the other, these symptoms had to be added as an “Other problem”. Methods This retrospective cross-sectional study included adult patients with advanced cancer at an inpatient palliative care unit. Data were collected from two versions of the Edmonton Symptom Assessment System (ESAS): modified (ESAS-m) listed 11 symptoms and revised (ESAS-r) listed 9 and allowed patients to add one “Other problem”. Seven similar symptoms were listed in both versions. Results In 2013, 184 patients completed ESAS-m, and in 2017, 156 completed ESAS-r. Prevalence and severity of symptoms listed in both versions did not differ. In ESAS-m, 83% reported dry mouth, 73% constipation, and 71% sleep problems, but on ESAS-r, these symptoms were reported by only 3%, 15% and < 1%, respectively. Although ESAS-r severity scores for these three symptoms were higher than on ESAS-m, differences did not reach statistical significance. Conclusion We identified significant differences in patient symptom reporting based on whether symptoms like dry mouth, obstipation and sleep problems were specifically assessed or had to be added by patients as an “Other problem”.

• Aaneland, Hilde Romsåshagen; Larsen, Marie Hamilton; Helseth, Sølvi & Wahl, Astrid Klopstad (2024). Quality Appraisal of Quality of Life Research in Children and Adolescents with Food Allergy: A Systematic Review. International Archives of Allergy and Immunology. ISSN 1018-2438. 185(11), s. 1083–1098. doi: 10.1159/000539113. Fulltekst i vitenarkiv
• Bjørnelv, Gudrun Maria Waaler; Aas, Eline; Aaltonen, Mari; Hagen, Terje P.; Thoresen, Lisbeth & Forma, Leena (2024). Place of living at end-of-life according to cause of death: a comparative analysis of all decedents 70 years or older in 2009-2013 in Finland and Norway. Annals of Palliative Medicine. ISSN 2224-5820. 13(3). doi: 10.21037/apm-23-269. Fulltekst i vitenarkiv Vis sammendrag

  Background: Time at home at end-of-life is perceived as valuable to individuals. Increasing home care is therefore often a political goal. Yet, little is known about where individuals live towards their end-of-life. Our aim was to describe where individuals reside their last 6 months of life in Finland and Norway, and how this differed by cause of death, sex, age, marital status, and income. Methods: We used individual-leveled national registry data on all decedents aged >70 years in 2009–2013 to describe the number of days individuals spent at home, in hospital, in long-term care (LTC) and short-term care (STC) facilities. We described the place of residence for all and by causes of death: cancer, diseases of the circulatory system, disease in the respiratory system, and mental and behavioral disorders (primarily dementia). We analyzed how age, marital status (indicating informal care), and income associated with place of residence. Analyses were stratified by sex and country. Results: During the last 6 months of life, decedents in Finland (n=186,017) and Norway (n=159,756) spent similar amounts of days in hospital (8 and 11 days) and in STC facilities (15 and 13 days). Finnish decedents spent more days at home (96 vs. 84 days) and fewer days in LTC facilities (64 vs. 80 days). Living arrangement differed similarly by cause of death in the two countries, e.g., decedents from cancer and mental and behavioral disorders spent 123 [113] vs. 29 [21] days at home in Finland (Norway). In both countries, for all causes of death, lower age and marital status were associated with more days at home, for both males and females. While those with higher income spent more days at home in Norway, the opposite was found in Finland. Conclusions: Older individual’s living arrangements in the last 6 months of life were similar in Finland and Norway but differed by cause of death. Younger individuals and those with access to informal care spent more days at home, compared to their counterparts. With aging populations, more individuals will likely need LTC at their end of life. Policies should align with these needs when developing future health care services.

• Borge, Christine Råheim; Larsen, Marie Hamilton; Osborne, Richard H.; Aas, Eline; Kolle, Ingrid Tryland & Reinertsen, Rikke [Vis alle 15 forfattere av denne artikkelen] (2024). Impacts of a health literacy-informed intervention in people with chronic obstructive pulmonary disease (COPD) on hospitalization, health literacy, self-management, quality of life, and health costs – A randomized controlled trial. Patient Education and Counseling. ISSN 0738-3991. 123. doi: 10.1016/j.pec.2024.108220. Fulltekst i vitenarkiv Vis sammendrag

  Objective: To compare the effect of motivational interviewing (MI) and tailored health literacy (HL) follow-up with usual care on hospitalization, costs, HL, self-management, Quality of life (QOL), and psychological stress in people with chronic obstructive pulmonary disease (COPD). Methods: A RCT was undertaken in Norway between March 2018-December 2020 (n = 127). The control group (CG, n = 63) received usual care. The intervention group (IG, n = 64) received tailored HL follow-up from MI-trained COPD nurses with home visits for eight weeks and phone calls for four months after hospitalization. Primary outcomes were hospitalization at eight weeks, six months, and one year from baseline. The trial was registered with ClinicalTrials.gov (NCT03216603) and analysed per protocol. Results: Compared with the IG, the CG had 2.8 higher odds (95% CI [1.3 to 5.8]) of hospitalization and higher hospital health costs (MD=€ −6230, 95% CI [−6510 to −5951]) and lower QALYs (MD=0.1, 95% CI [0.10 to 0.11]) that gives an ICER = − 62,300. The IG reported higher QOL, self-management, and HL (p = 0.02- to <0.01). Conclusion: MI-trained COPD nurses using tailored HL follow-up is cost-effective, reduces hospitalization, and increases QOL, HL, and self-care in COPD. Practice implication: Tailored HL follow-up is beneficial for individuals with COPD and the healthcare system.

• Hillestad, Adelheid Hummelvoll; Petersen, Eline Kaupang; Roos, Maud; Iversen, Maria; Jansen, Trine-Lise & Kvande, Monica Evelyn (2024). Judith Butler's theoretical perspectives within a nursing context - a scoping review. Nursing Ethics. ISSN 0969-7330. s. 1–18. doi: 10.1177/09697330241257569. Fulltekst i vitenarkiv Vis sammendrag

  Philosopher Judith Butler has influenced how people talk about vulnerable bodies and sees vulnerability as universal, existential, and relational. Being vulnerable is part of the human condition. The main theoretical areas that run across Butler’s work; power, knowledge and subjectivity, performativity, and ethics—are of particular relevance to nursing practice. This review aims to explore how Butler’s theoretical work is reflected in research literature within a nursing context. We conducted a scoping review guided by Arksey and O’Malley’s methodological framework. A systematic literature search of CINAHL (EBSCOhost), MEDLINE (Ovid), Embase (Ovid), PsycINFO (Ovid), and Web of Science identified 15 papers. Butler’s theoretical work was applied at an individual and social level in research literature within a nursing context. Nurses need to reflect on their clinical practice and role as health professionals in relation to power and performativity in encounters with patients who are marginalized. Nurses’ working conditions, recognition, and understanding are strongly influenced by society, and calling nurses heroes undermines their capacity to challenge and resist the hero identity. The healthcare system’s impact on patient-nurse encounters challenges patients’ and nurses’ subjectivity, performativity, and power relations. The review allowed us to describe how Butler’s theoretical work can facilitate a reflection on nursing practice which is a prerequisite for caring, ethical relationships, and working conditions within a nursing context. Butler’s concepts can provide useful perspectives on how nurses understand, communicate with, and care for patients, as well as a nuanced understanding of the nursing role and power relations and structures.

• Anpalagan, Abinaya; Fesseha, Hanna & Houge, Anette Bringedal (2024). General practitioners’ knowledge and practice in consultations with (potential) torture victims: a qualitative pilot study from Norway. Scandinavian Journal of Primary Health Care. ISSN 0281-3432. doi: 10.1080/02813432.2024.2404054. Fulltekst i vitenarkiv Vis sammendrag

  Background According to the UN Committee Against Torture, all state parties to the Torture Convention have a responsibility to meet the rehabilitation needs of torture victims who have sought asylum within their borders. General practitioners (GPs) can play a crucial role in identifying torture victims and securing rehabilitation when needed. There is a pressing knowledge gap on the knowledge and practices of GPs vis-à-vis potentially tortured patients, and an urgent need for research that investigates GPs’ practices of identification, referral, and rehabilitation – in Norway and beyond. This article presents an exploratory qualitative pilot study that investigates the experiences of GPs in Oslo vis-à-vis this patient group. Methods Semi-structured interviews with five experienced GPs in the greater Oslo area. Interview data was analyzed through thematic analysis and discussed within a theoretical framework seeing GPs as street-level bureaucrats. Results Issues that emerged in the pilot involve a consistent professional confidence and a particular concern for victims of sexual violence and sexualized torture. The pilot also found a troubling commonsensical reasoning about identification in the asylum process. The GPs asked for the re-establishment of specialist rehabilitation centers for refugees and torture victims to consult in case of need. Alas, the study also confirmed that GPs are a difficult profession to recruit for research. Conclusions This study indicates that GPs are important actors in terms of identifying torture victims after resettlement, but that there are shortcomings in their training and knowledge, in the overall organization of the healthcare system, and in specialized healthcare, that limit prospects for rehabilitation.

• Vidnes, Tone Karine; Wahl, Astrid Klopstad; Larsen, Marie Hamilton; Meyer, Käthe Birgitte; Hermansen, Åsmund & Andersen, Marit Helen (2024). Health literacy profiles in kidney transplanted patients: A cluster analysis. Journal of Renal Care. ISSN 1755-6678. 50(4), s. 529–537. doi: 10.1111/jorc.12515. Fulltekst i vitenarkiv Vis sammendrag

  Background: Health literacy is important in chronic conditions, such as kidney transplantation. Understanding patients' health literacy profiles can assist tailoring follow‐up and educational programmes to the health literacy needs of vulnerable kidney transplant recipients. This approach enabled us to cluster patients according to their profiles of challenges and strengths in different health literacy domains. Objectives: This study aimed to identify different health literacy profiles within kidney transplant recipients and what characterized the different profiles. Design: Cross‐sectional study. Participants: One hundred ninety‐five kidney transplanted recipients were included. Measurements: We used the self‐reported Health Literacy Questionnaire and analyzed using Ward's method (hierarchical cluster approach). We also collected background characteristics and clinical variables, including psychological distress (Hopkins Symptoms Checklist) and perceived health status (visual analogue scale, EuroQol‐5D). Results: The analysis revealed four clusters with substantial differences in health literacy profiles. One cluster's patients had the most challenges in all health literacy domains constituting 24% of the sample. Compared to the other three clusters, this cluster was associated with shorter duration of kidney disease, higher number of patients in dialysis before transplantation, higher percentage of male patients, lower number of kidneys from living donors, higher number of patients not working and higher representation of psychological distress. All four clusters reported the most challenges in the same domain: the ability to critically appraise health information. Conclusion: In kidney transplant recipients, profiling clusters with the Health Literacy Questionnaire and Ward's method aids in identifying health literacy needs in vulnerable groups, enabling transplant professionals to offer tailored health literacy support.

• Moger, Tron Anders; Holte, Jon Helgheim; Amundsen, Olav; Haavaag, Silje Bjørnsen; Døhl, Øystein & Bragstad, Line Kildal [Vis alle 9 forfattere av denne artikkelen] (2024). The in- and outpatient health care use of patients with COPD before and after initiation of home care: a registry study from Norway. Scandinavian Journal of Primary Health Care. ISSN 0281-3432. 43(1). doi: 10.1080/02813432.2024.2404056. Fulltekst i vitenarkiv Vis sammendrag

  Objective: Chronic obstructive pulmonary disease (COPD) is a common condition associated with age, multimorbidity and frequently involves the use of health care across levels. Understanding the factors associated with the initiation of long-term care is important when planning the future need for services. We describe healthcare use before and after the reception of any home care. We further studied the associations between healthcare use and first registered home care service and from first registered home care service to nursing home admission or death. Design and subjects: Patients residing in Oslo or Trondheim at the time of first contact with a COPD primary diagnosis, 2009–2018. Patient data were linked across national and municipal registries, covering healthcare and sociodemographics. The sample consisted of 16,738 individuals. Results: There was a marked increase in inpatient and outpatient hospital contacts in the years prior to and after the reception of any home care. Adjusted for comorbidities and sociodemographics, high numbers of GP consultations, and inpatient and outpatient hospital contacts for respiratory diagnoses were associated with a significantly higher likelihood of receiving home care the next year (hazard odds ratios > 1.3). Following the reception of home care, the type of home care service received (e.g. home nursing or short-term rehabilitation/treatment) was more important than outpatient services in predicting next-year nursing home admission or death. Conclusion: Including data on prior outpatient care when predicting future need for home care is beneficial. A high frequency (top 10%) of yearly GP, in- or outpatient hospital contacts can imply that the patient may be in need of home care in the near future.

• Tyrdal, Mari Kristine; Perrier, Flavie; Røe, Cecilie; Natvig, Bård; Wahl, Astrid Klopstad & Veierød, Marit Bragelien [Vis alle 7 forfattere av denne artikkelen] (2024). Musculoskeletal disorders in Norway: trends in health care utilization and patient pathways: a nationwide register study. Scandinavian Journal of Primary Health Care. ISSN 0281-3432. 42(4), s. 582–592. doi: 10.1080/02813432.2024.2368848. Fulltekst i vitenarkiv Vis sammendrag

  Objective Describe trends in health care utilization, demographic characteristics and patient pathways among patients with musculoskeletal disorders (MSD) in Norway. Design Register-based cohort study. Settings Data were obtained from two Norwegian National registries; the Norwegian Control and Payment of Health Reimbursements Database (KUHR) and the Norwegian Patient Registry (NPR). Subjects Patients with MSD according to ICPC-2 and ICD-10 during 2014–2017. Main outcome measures Patient pathways from the first contact and the following two years, described in a Sankey Diagram for all MSD patients and three common diagnoses: spine pain, osteoarthritis (OA) and fibromyalgia (FM). Result About 26% of the Norwegian population consulted PHC annually while 7% were treated in SHC. Mean age was 47 and 53 years in PHC and SHC, respectively. The proportion of women increased by age. Spine pain was the most common diagnosis; 33% and 22% in PHC and SHC, respectively. Over 90% visited a GP first, 50% of them were treated by PT and/or in SHC during follow-up. Patients visiting the PT first were less likely to be treated in SHC. OA patients were most likely to be treated by more than one health care professional (>70%). Conclusion One third of the Norwegian population consulted health care services due to MSD annually between 2014–2017. GP was the most consulted health care professional. Among MSD patients with long-term use of health care services, 50% were treated by a PT and/or in SHC in addition to a GP.

• Amundsen, Olav; Moger, Tron Anders; Holte, Jon Helgheim; Haavaag, Silje Bjørnsen; Bragstad, Line Kildal & Hellesø, Ragnhild [Vis alle 8 forfattere av denne artikkelen] (2024). Patient characteristics and healthcare use for high-cost patients with musculoskeletal disorders in Norway: a cohort study. BMC Health Services Research. 24(1). doi: 10.1186/s12913-024-12051-3. Fulltekst i vitenarkiv Vis sammendrag

  Background: A high proportion of healthcare costs can be attributed to musculoskeletal disorders (MSDs). A small proportion of patients account for most of the costs, and there is increasing focus on addressing service overuse and high costs. We aimed to estimate healthcare use contributing to high costs over a five-year period at the individual level and to examine if healthcare use for high-cost patients is in accordance with guidelines and recommendations. These findings contribute to the understanding of healthcare use for high-cost patients and help in planning future MSD-care. Methods: This study combined Norwegian registries on healthcare use, diagnoses, demographic, and socioeconomic factors. Patients (≥ 18 years) were included by their first MSD-contact in 2013–2015. We analysed healthcare use during the subsequent five years. Descriptive statistics were used to compare high-cost (≥ 95th percentile) and non-high-cost patients. Total healthcare contacts and costs for high-cost patients were examined stratified by number of hospitalisations and surgical treatments. Healthcare use of General Practitioners (GPs), physiotherapy, chiropractor and Physical Medicine and Rehabilitation physicians prior to the first hospitalisation or surgical treatment for a non-traumatic MSD was registered. Results: High-cost patients were responsible for 61% of all costs. Ninety-four percent of their costs were related to hospital treatment. Ninety-nine percent of high-cost patients had at least one hospitalisation or surgical procedure. Out of the high-cost patients, 44% had one registered hospitalisation or surgical procedure, 52% had two to four and 4% had five or more. Approximately 30–50% of patients had seen any healthcare personnel delivering conservative treatment other than GPs the year prior to their first hospitalisation/surgical treatment for a non-traumatic MSD. Conclusion: Most healthcare costs were concentrated among a small proportion of patients. In contrast to guidelines and recommendations, less than half had been to a healthcare service focused on conservative management prior to their first hospitalisation or surgical treatment for a non-traumatic MSD. This could indicate that there is room for improvement in management of patients before hospitalisation and surgical treatment, and that ensuring sufficient capacity for conservative care and rehabilitation can be beneficial for reducing overall costs.

• Thoresen, Lisbeth & Bondevik, Hilde (2024). En stille stund med mor – dødsleiet i nyere norsk skjønnlitteratur. Tidsskrift for omsorgsforskning. ISSN 2387-5976. doi: 10.18261/tfo.10.1.2. Fulltekst i vitenarkiv Vis sammendrag

  Døden og dødsleiet er et sentralt motiv i kunst og litteratur. For den allmenne leseren, men også for helsepersonell og forskere, kan litterære fortellinger bidra til økt forståelse for det å leve med sykdom, være døende og dødsleiet. Hensikten med denne artikkelen er å undersøke hvordan dødsleiet fremstilles i de tre norske romanene Selveiersanger (2021) av Marianne Marthinsen, Mor om natten av Niels Fredrik Dahl (2017) og Nåde av Linn Ullmann (2002). Vår lesning kan karakteriseres som fenomenologisk og erfaringsnær. Det innebærer at lesningen er preget av hva romanene vekker i oss. De tre romanene synliggjør hvordan et dødsleie alltid inngår i en større livsfortelling. Videre utfordrer de tre fortellingene kulturelle idealer om den fredfulle døden og forestillinger om forsoning og tilgivelse. Skjønnlitteraturen treffer og utfordrer antagelser om døden og dødsleiet på andre måter enn helsepolitiske målsettinger og helsefaglige idealer og retningslinjer.

• Wigers, Sigrid Hørven; Veierød, Marit Bragelien; Mengshoel, Anne Marit; Forseth, Karin Maria Øien; Dahli, Mina Piiksi & Juel, Niels Gunnar [Vis alle 7 forfattere av denne artikkelen] (2024). Healthcare experiences of fibromyalgia patients and their associations with satisfaction and pain relief. A patient survey. Scandinavian Journal of Pain. ISSN 1877-8860. 24(1). doi: 10.1515/sjpain-2023-0141. Fulltekst i vitenarkiv Vis sammendrag

  Objectives The etiology of fibromyalgia (FM) is disputed, and there is no established cure. Quantitative data on how this may affect patients’ healthcare experiences are scarce. The present study aims to investigate FM patients’ pain-related healthcare experiences and explore factors associated with high satisfaction and pain relief. Methods An anonymous, online, and patient-administered survey was developed and distributed to members of the Norwegian Fibromyalgia Association. It addressed their pain-related healthcare experiences from both primary and specialist care. Odds ratios for healthcare satisfaction and pain relief were estimated by binary logistic regression. Directed acyclic graphs guided the multivariable analyses. Results The patients (n = 1,626, mean age: 51 years) were primarily women (95%) with a 21.8-year mean pain duration and 12.7 years in pain before diagnosis. One-third did not understand why they had pain, and 56.6% did not know how to get better. More than half had not received satisfactory information on their pain cause from a physician, and guidance on how to improve was reported below medium. Patients regretted a lack of medical specialized competence on muscle pain and reported many unmet needs, including regular follow-up and pain assessment. Physician-mediated pain relief was low, and guideline adherence was deficient. Only 14.8% were satisfied with non-physician health providers evaluating and treating their pain, and 21.5% were satisfied (46.9% dissatisfied) with their global pain-related healthcare. Patients’ knowledge of their condition, physicians’ pain competence and provision of information and guidance, agreement in explanations and advice, and the absence of unmet needs significantly increased the odds of both healthcare satisfaction and pain relief. Conclusions Our survey describes deficiencies in FM patients’ pain-related healthcare and suggests areas for improvement to increase healthcare satisfaction and pain relief. (REC# 2019/845, 09.05.19).

• Rognsvåg, Turid; Bergvad, Ingvild Buset; Furnes, Ove Nord; Indrekvam, Kari; Lerdal, Anners & Lindberg, Maren Falch [Vis alle 9 forfattere av denne artikkelen] (2024). Exercise therapy, education, and cognitive behavioral therapy alone, or in combination with total knee arthroplasty, in patients with knee osteoarthritis: a randomized feasibility study. Pilot and Feasibility Studies. 10. doi: 10.1186/s40814-024-01470-y. Fulltekst i vitenarkiv Vis sammendrag

  Background: One in five patients experience chronic pain 1 year after total knee arthroplasty (TKA), highlighting the need for enhanced treatment strategies to improve outcomes. This feasibility trial aimed to optimize the content and delivery of a complex intervention tailored to osteoarthritis (OA) patients at risk of poor outcome after TKA and assess the feasibility of initiating a full-scale multicenter randomized controlled trial (RCT). Methods: Patients scheduled for TKA were included between August 2019 and June 2020 and block-randomized into one of three groups: (a) 12-week exercise therapy and education (ExE) and 10-module internet-delivered cognitive behavioral therapy (iCBT), (b) TKA followed by ExE and iCBT and (c) TKA and standard postoperative care. Outcomes were (i) recruitment and retention rate, (ii) compliance to the intervention and follow-up, (iii) crossover, and (iv) adverse events, reported by descriptive statistics. Results: Fifteen patients were included in the study. Only 1 out of 146 patients screened for eligibility was included during the first 4 months. During the next 3 months, 117 patients were not included since they lived too far from the hospital. To increase the recruitment rate, we made three amendments to the inclusion criteria; (1) at-risk screening of poor TKA outcome was removed as an eligibility criterion, (2) patients across the country could be included in the study and (3) physiotherapists without specific certification were included, receiving thorough information and support. No patients withdrew from the study or crossed over to surgery during the first year. Nine out of 10 patients completed the ExE program and six out of 10 completed the iCBT program. Fourteen out of 15 patients completed the 1-year follow-up. One minor adverse event was registered. Conclusions: Except for recruitment and compliance to iCBT, feasibility was demonstrated. The initial recruitment process was challenging, and necessary changes were made to increase the recruitment rate. The findings informed how a definitive RCT should be undertaken to test the effectiveness of the complex intervention.

• Mulrooney, Elisabeth; Neogi, Tuhina; Dagfinrud, Hanne; Hammer, Hilde Berner; Pettersen, Pernille Steen & Kvien, Tore Kristian Aaserud [Vis alle 8 forfattere av denne artikkelen] (2024). Hand osteoarthritis phenotypes based on a biopsychosocial approach, and their associations with cross-sectional and longitudinal pain. Osteoarthritis and Cartilage. ISSN 1063-4584. doi: 10.1016/j.joca.2024.04.011. Fulltekst i vitenarkiv Vis sammendrag

  Objective Hand osteoarthritis (OA) pain is characterized as heterogeneous and multifactorial. Differences in pain may be explained by underlying phenotypes, which have not been previously explored Design Latent class analysis determined classes of participants with hand OA from the Nor-Hand study baseline examination (2016–17) based on a biopsychosocial framework. Outcomes were hand and overall bodily pain intensity (Numeric Rating Scale, 0–10) at baseline and follow-up (2019–21), The relations of the classes to pain outcomes at baseline, follow-up, and change over time were analysed in separate models by linear regression, using the overall healthiest class as reference. Results Five classes differing in radiographic hand OA burden and OA burden in the lower extremities by ultrasound, demographic factors, psychosocial burden and pain sensitization was identified. Persons with the least severe OA but higher burden of biopsychosocial factors reported the most hand pain (beta 3.65, 95% CI 2.53, 4.75). Pain was less pronounced in persons with the most severe hand OA but low burden of biopsychosocial factors (beta 1.03, 95% CI 0.41, 1.65). Results were similar for overall bodily pain and at follow-up. Changes in pain were small, but the association between a separate class defined by higher levels of biopsychosocial burden and pain changes was significant. Conclusion The five hand OA phenotypes were associated with pain at baseline and 3.5 years later. The phenotype with the least OA severity, but higher burden of biopsychosocial factors reported more pain than the phenotype with the most severe OA, reflecting the symptom-structure discordance of the hand OA pain experience.

• Krabbe, Silje Helen; Bjorbækmo, Wenche Schrøder; Mengshoel, Anne Marit; Sveen, Unni & Groven, Karen Synne (2024). A suffering body, hidden away from others: The experience of being long-term bedridden with severe myalgic encephalomyelitis/chronic fatigue syndrome in childhood and adolescence. Nursing Inquiry (NI). ISSN 1320-7881. 31(3), s. e12625–e12625. doi: 10.1111/nin.12625. Fulltekst i vitenarkiv Vis sammendrag

  In this article, we present findings from a qualitative study examining how young women experience being long‐term bedridden with myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), during childhood and adolescence. The aim is to explore how young women who fell ill with ME/CFS during childhood and adolescence look back on their lived experience of being long‐term bedridden from the vantage point of being fully or partially recovered. Informed by a phenomenological theoretical perspective, the researchers applied a narrative methodological approach involving the analysis of interviews with 13 women, aged 16–29 years at the time of the interview. Attention was particularly paid to how participants structured their narratives and to the events (telling moments) they identified as important. Four major storylines were developed: Ambivalent responses to the presence of others; A body on the edge of life; An eternity in the dark; and Recasting painful memories of being bedridden and alone. Based on our findings, we argue that the experience of being long‐term bedridden with ME/CFS during childhood and adolescence can be understood and communicated as a plot in which individuals find themselves pushed to the extreme limit of suffering and loneliness.

• Robinson, Hilde Stendal; Vøllestad, Nina Køpke; Bennetter, Karin Elisabeth; Waage, Christin Wiegels; Jenum, Anne Karen & Richardsen, Kåre Rønn (2024). Pelvic girdle pain in pregnancy and early postpartum – prevalence and risk factors in a multi-ethnic cohort. BMC Musculoskeletal Disorders. 25(1). doi: 10.1186/s12891-023-07135-w. Fulltekst i vitenarkiv Vis sammendrag

  Background Pelvic girdle pain (PGP) is common during and after pregnancy. It has been assumed that Scandinavian women report more PGP than women of other ethnicities. However, there are few population-based studies on ethnic diferences and few with ethnicity as risk factor for PGP. The purposes of the present study were: To examine the prevalence of self-reported PGP through pregnancy and early postpartum in a multi-ethnic cohort. To investigate how ethnicity and patient characteristics were associated with risk of PGP during pregnancy and early postpartum. To investigate if clinical and personal factors obtained in gestation week (GW) 15 were associated with PGP in GW28 and postpartum week (PPW) 14. Methods This study analyzed questionnaire data from 823 women from the Stork - Groruddalen mult-iethnic cohort study in Norway. Chi-square tests were used to investigate ethnic diferences in prevalence of self-reported PGP, and logistic regression analyses to identify factors associated with self-reported PGP. Results Women from South-Asia and Middle East reported 10-20% higher prevalence of self-reported PGP at all time points compared with Western women. Ethnicity was associated with PGP in GW15 and PPW14, adjusted for parity. Pain locations in pelvic area (PGP locations) in GW15, especially combined symphysis and posterior PGP, gave the highest risk (OR=7.4) for PGP in GW28 and in PPW14 (OR = 3.9). Being multiparous was a risk for PGP in PPW14 (OR=1.9). Conclusions Women of South Asian and Middle Eastern background had higher risk of self-reported PGP than Western women. Ethnicity was associated with PGP in GW15 and PPW14, after adjustments for parity. PGP locations in GW15 was the most prominent risk factor for PGP in GW28 and PPW14, whilst ethnicity was not signifcant in multivariable analyses.

• Nyhagen, Ragnhild; Egerod, Ingrid; Rustøen, Tone; Lerdal, Anners & Kirkevold, Marit (2024). Family Members' Engagement in Symptom Communication, Assessment, and Management in the Intensive Care Unit: A Qualitative Study. Dimensions of Critical Care Nursing. ISSN 0730-4625. 43(3), s. 111–122. doi: 10.1097/DCC.0000000000000637. Fulltekst i vitenarkiv
• Gulseth, Eirik; Urdal, Andreas Martin; Andersen, Marit Helen; Falk, Ragnhild Sørum; Aksnes, Gunnar & Emblem, Ragnhild [Vis alle 8 forfattere av denne artikkelen] (2024). Mental health and health-related quality of life in adolescents surgically treated for hypospadias in childhood. Journal of Pediatric Urology. ISSN 1477-5131. doi: 10.1016/j.jpurol.2024.09.031. Fulltekst i vitenarkiv Vis sammendrag

  Background There is limited research and conflicting results on the mental health and health-related quality of life of individuals surgically treated for hypospadias in childhood. Furthermore, the significance of patient-reported outcomes (PRO) in hypospadias is growing. More research is necessary on these topics, particularly in adolescents. Objective We aimed to compare mental health, health-related quality of life, body satisfaction, self-esteem, penile appearance, and sexual function outcomes in 16-year-old adolescents who had surgery for hypospadias in childhood with a healthy comparison group. Study design The study involved 16-year-old adolescents who had surgery for hypospadias in one Norwegian hospital. An age-matched comparison group of healthy adolescents was previously recruited. The study assessed self-reported outcomes on mental health using the Strengths and Difficulties Questionnaire, health-related quality of life using the Pediatric Quality of Life Inventory, body satisfaction and self-esteem using the Self-Perception Profile for Adolescents, and genital perception and sexual function using the Pediatric Penile Perception Score and a non-validated structured interview. Results In total, 117 adolescents operated for hypospadias and 61 healthy adolescents were included. The outcomes for mental health and health-related quality of life were not statistically different between groups. However, 18 (16%) hypospadias patients were classified as cases/borderline on mental health outcomes, compared to 2 (3%) in the comparison group (p = 0.01). Patients classified as cases/borderline on mental health reported lower health-related quality of life, self-esteem, and more stressful life events. Self-reported penile appearance and sexual function were comparable between groups, however the proximal hypospadias group displayed lower satisfaction. Discussion Although the present study had generally positive outcomes, a significant finding was that a higher number of adolescents who had previously undergone hypospadias surgery during childhood were classified as cases or borderline cases with respect to mental health issues. Hypospadias surgery in childhood may pose challenges for some patients during adolescence, particularly in the proximal group. Regular monitoring by healthcare professionals is crucial in providing necessary support. A limitation is the small size of the subgroups. Conclusion Most patients report good mental health, quality of life, and self-esteem even though patients with hypospadias report more mental health issues than the comparison group. Proximal hypospadias were less satisfied with penile appearance and sexual function. However, due to the small sample size, conclusions about this group should be treated cautiously. Assessing self-reported outcomes in follow-ups is important to identify adolescents who had hypospadias surgery and are at risk for reduced mental health.

• Moger, Tron Anders; Holte, Jon Helgheim; Amundsen, Olav; Haavaag, Silje Bjørnsen; Edvardsen, Anne & Bragstad, Line Kildal [Vis alle 9 forfattere av denne artikkelen] (2024). Associations between outpatient care and later hospital admissions for patients with chronic obstructive pulmonary disease - a registry study from Norway. BMC Health Services Research. 24(1). doi: 10.1186/s12913-024-10975-4. Fulltekst i vitenarkiv Vis sammendrag

  Background Although chronic obstructive pulmonary disease (COPD) admissions put a substantial burden on hospitals, most of the patients’ contacts with health services are in outpatient care. Traditionally, outpatient care has been difficult to capture in population-based samples. In this study we describe outpatient service use in COPD patients and assess associations between outpatient care (contact frequency and specific factors) and next-year COPD hospital admissions or 90-day readmissions. Methods Patients over 40 years of age residing in Oslo or Trondheim at the time of contact in the period 2009–2018 were identified from the Norwegian Patient Registry (in- and outpatient hospital contacts, rehabilitation) and the KUHR registry (contacts with GPs, contract specialists and physiotherapists). These were linked to the Regular General Practitioner registry (characteristics of the GP practice), long-term care data (home and institutional care, need for assistance), socioeconomic and–demographic data from Statistics Norway and the Cause of Death registry. Negative binomial models were applied to study associations between combinations of outpatient care, specific care factors and next-year COPD hospital admissions and 90-day readmissions. The sample consisted of 24,074 individuals. Results A large variation in the frequency and combination of outpatient service use for respiratory diagnoses (GP, emergency room, physiotherapy, contract specialist and outpatient hospital contacts) was apparent. GP and outpatient hospital contact frequency were strongly associated to an increased number of next-year hospital admissions (1.2–3.2 times higher by increasing GP frequency when no outpatient hospital contacts, 2.4-5 times higher in combination with outpatient hospital contacts). Adjusted for healthcare use, comorbidities and sociodemographics, outpatient care factors associated with lower numbers of next-year hospitalisations were fees indicating interaction between providers (7% reduction), spirometry with GP or specialist (7%), continuity of care with GP (15%), and GP follow-up (8%) or rehabilitation (18%) within 30 days vs. later following any current year hospitalisations. For 90-day readmissions results were less evident, and most variables were non-significant. Conclusion As increased use of outpatient care was strongly associated with future hospitalisations, this further stresses the need for good communication between providers when coordinating care for COPD patients. The results indicated possible benefits of care continuity within and interaction between providers.

• Indregard, Anne Marthe Rustad; Nussle, Hans Martin; Hagen, Milada; Vandvik, Per Olav; Tesli, Martin Steen & Gather, Jakov [Vis alle 7 forfattere av denne artikkelen] (2024). Open-door policy versus treatment-as-usual in urban psychiatric inpatient wards: a pragmatic, randomised controlled, non-inferiority trial in Norway. The Lancet Psychiatry. ISSN 2215-0374. 11(5), s. 330–338. doi: 10.1016/S2215-0366(24)00039-7. Fulltekst i vitenarkiv Vis sammendrag

  Background - Open-door policy is a recommended framework to reduce coercion in psychiatric wards. However, existing observational data might not fully capture potential increases in harm and use of coercion associated with open-door policies. In this first randomised controlled trial, we compared coercive practices in open-door policy and treatment-as-usual wards in an urban hospital setting. We hypothesised that the open-door policy would be non-inferior to treatment-as-usual on the proportion of patients exposed to coercive measures.<p> <p>Methods - We conducted a pragmatic, randomised controlled, non-inferiority trial comparing two open-door policy wards and three treatment-as-usual acute psychiatric wards at Lovisenberg Diaconal Hospital in Oslo, Norway. An exemption from the consent requirements enabled inclusion and random allocation of all patients admitted to these wards using an open list (2:3 ratio) administrated by a team of ward nurses. The primary outcome was the proportion of patient stays with one or more coercive measures, including involuntary medication, isolation or seclusion, and physical and mechanical restraints. The non-inferiority margin was set to 15%. Primary and safety analyses were assessed using the intention-to-treat population. The trial is registered with ISRCTN registry and is complete, ISRCTN16876467.<p> <p>Findings - Between Feb 10, 2021, and Feb 1, 2022, we randomly assigned 556 patients to either open-door policy wards (n=245; mean age 41·6 [SD 14·5] years; 119 [49%] male; 126 [51%] female; and 180 [73%] admitted to the ward involuntarily) or treatment-as-usual wards (n=311; mean age 41·6 [4·3] years; 172 [55%] male and 138 [45%] female; 233 [75%] admitted involuntarily). Data on race and ethnicity were not collected. The open-door policy was non-inferior to treatment-as-usual on all outcomes: the proportion of patient stays with exposure to coercion was 65 (26·5%) in open-door policy wards and 104 (33·4%) in treatment-as-usual wards (risk difference 6·9%; 95% CI –0·7 to 14·5), with a similar trend for specific measures of coercion. Reported incidents of violence against staff were 0·15 per patient stay in open-door policy wards and 0·18 in treatment-as-usual wards. There were no suicides during the randomised controlled trial period.<p> <p>Interpretation - The open-door policy could be safely implemented without increased use of coercive measures. Our findings underscore the need for more reliable and relevant randomised trials to investigate how a complex intervention, such as open-door policy, can be efficiently implemented across health-care systems and contexts.

• Remmel, Maali-Liina; Suija, Kadri; Raudne, Riina; Tisler, Anna; Ķīvīte-Urtāne, Anda & Stankūnas, Mindaugas [Vis alle 10 forfattere av denne artikkelen] (2024). Women’s perspectives on the acceptability of risk-based cervical cancer screening. BMC Cancer. 24(1). doi: 10.1186/s12885-024-13050-7. Fulltekst i vitenarkiv Vis sammendrag

  Background The increased knowledge of cervical cancer (CC) risk factors and suboptimal performance of present screening programs has generated interest in shifting from a universal screening approach to one based on individual risk assessment. To inform the future development of risk-based CC screening programs, it is crucial to gain insight into the factors influencing the acceptability of such approach among screening target group women. The aim of this study was to prospectively investigate the acceptability of risk-based CC screening and to identify potential barriers. Methods In this qualitative study, one-to-one semi-structured interviews were conducted with a purposeful sample including women aged 30–65 years to explore women’s perspectives on the acceptability of risk-based CC screening. The study was conducted in Estonia, and interviews were conducted from March to September 2023. Potential participants were approached in person by a member of the study team or by their healthcare providers at primary care or gynaecology clinics. The interview guides were developed based on the concept of acceptability of healthcare interventions. Results Twenty participants (mean age 44.5, SD = 8.6) with diverse backgrounds were interviewed. The seven components of acceptability (affective attitude, burden, ethicality, opportunity costs, perceived effectiveness, self-efficacy, and intervention coherence) were explored as key themes. Generally, women supported risk-based screening. However, we identified several factors that may compromise the acceptability of risk-based screening. The participants were reluctant to accept less intense screening for low-risk women and anticipated that if risk-based approach was implemented, more frequent testing would remain an option. Providing in-person clinician support was expected, requiring additional healthcare resources. Knowledge gaps in CC prevention highlighted the need for accessible information and education. Most women were unworried about sensitive data inclusion in risk score calculations. However, some participants were concerned about potential confidentiality breaches by healthcare workers. Conclusion This study indicates that risk-based CC screening is acceptable, except for testing low-risk women less frequently. Our findings underscore the necessity for comprehensive understanding of the needs and concerns of the target group women for program development. Healthcare organizations are required to proactively address these needs by implementing comprehensive information dissemination and efficient communication approaches.

• Rognsvåg, Turid; Nordmo, Ingrid Kismul; Bergvad, Ingvild Buset; Fenstad, Anne Marie; Furnes, Ove Nord & Lerdal, Anners [Vis alle 9 forfattere av denne artikkelen] (2024). Digital health literacy in Norwegian patients with hip and knee arthroplasty: normative data from a cross-sectional study. Acta Orthopaedica. ISSN 1745-3674. 95, s. 677–684. doi: 10.2340/17453674.2024.42304. Fulltekst i vitenarkiv Vis sammendrag

  Background and purpose: As digital health services become increasingly important in osteoarthritis treatment, understanding patients’ digital health literacy (eHL) is crucial, including those undergoing total hip and knee arthroplasty (THA/TKA). We primarily aimed to provide eHL norms in a representative group of Norwegian patients, and secondarily to examine the relationships between eHL and health-related quality of life (QoL). Methods: We invited 800 randomly selected THA/TKA patients from the Norwegian Arthroplasty Register to complete a paper-based questionnaire, which included sociodemographic variables. eHL was measured using the eHealth Literacy Questionnaire (eHLQ) with 7 domains: Using technology, Understand, Engage, Control, Motivation, Access, and Needs, scored from 1 (strongly disagree) to 4 (strongly agree). The EuroQol EQ-5D-5L measured health-related QoL. We used multivariable regression to examine relationships between eHL domains and health-related QoL controlling for sociodemographic variables. Results: Respondents’ (N = 383, 48%) mean age was 70 years (SD 9.0) and 246 (64%) were female. Mean eHLQ and the proportion of patients with low eHL (≤ 2.5) were Technology 2.7 (34%), Understanding 3.0 (14%), Engage 2.7 (28%), Control 3.2 (7.7%), Motivation 2.8 (35%), Access 2.8 (33%), and Needs 2.6 (46%). Low eHL correlated with older age and low education, but not with sex or type of surgery. Regression analyses showed that lower scores on the domains Technology, Engage, Control, Access, and Needs were associated with poorer QoL after adjusting for sociodemographic factors. Conclusion: About one-third of THA/TKA patients have low eHL, and low eHL was associated with poor QoL.

• Larsson, Petra; Edvardsen, Elisabeth; Gay, Caryl; Ursin, Marie Helene; Mack, Ulrich & Lerdal, Anners (2024). Cardiorespiratory fitness, physical activity, and fatigue three months after first-ever ischemic stroke. Topics in Stroke Rehabilitation. ISSN 1074-9357. 31(8), s. 817–827. doi: 10.1080/10749357.2024.2333191. Fulltekst i vitenarkiv Vis sammendrag

  Background: Research on cardiorespiratory fitness (CRF) in relation to physical activity (PA) and fatigue after stroke is limited. Increased knowledge of interrelationships between these factors can help optimize rehabilitation strategies and improve health-outcomes. Objectives: We aimed to: 1) evaluate CRF, PA, and fatigue, 2) characterize patients with impaired versus non-impaired CRF, and 3) examine associations of CRF with PA and fatigue, three months after first-ever ischemic stroke. Methods: In this cross-sectional study CRF was measured as peak oxygen uptake (VO2peak) by cardiopulmonary exercise testing. PA was measured using accelerometers. Fatigue was assessed with the 7-item Fatigue Severity Scale (FSS). Results: The sample (n=74, mean age 64±13 years, 36% women) had a mean VO2peak of 27.0±8.7 (86% of predicted). Fifty-one percent met the World Health Organization’s recommendation of ≥150 min of moderate PA/week. Mean steps-per-day was 9316±4424 (113% of predicted). Thirty-five percent of the sample had moderate-to-high fatigue (FSS≥4), mean FSS score was 3.2±1.8. Patients with impaired CRF (VO2peak＜80% of predicted) had higher body-fat-percent (p＜0.01), less moderate-to-vigorous PA (MVPA) (p＜0.01) and a trend toward higher fatigue (p=0.053) compared to the non-impaired. Backward regression analysis showed that higher CRF was associated with more MVPA (unstandardized beta [95% CI]: 0.38 [0.15, 0.63], p=0.002) and less fatigue (unstandardized beta [95% CI]: -3.9 [-6.4, -1.6], p=0.004). Conclusions: Stroke patients had lower CRF compared to reference values. Impaired CRF was mainly related to overweight. Higher CRF was associated with more MVPA and less fatigue. Exercise after stroke may be especially beneficial for patients with impaired CRF.

• Grimsgaard, Elisabeth; Eik, Hedda; Bjorbækmo, Wenche & Ahlsen, Birgitte (2024). A breathing space: how young Norwegian women engaging psychomotor physiotherapy to address long-term health disorders narrate their experiences. Physiotherapy Theory and Practice. ISSN 0959-3985. doi: 10.1080/09593985.2024.2362321. Fulltekst i vitenarkiv
• Jannicke, Heramb-Aamot; Mala, Tom & Fauske, Lena (2024). Everyday Life Six to Eight Months After Esophagectomy for Cancer: A Qualitative Study. Anticancer Research. ISSN 0250-7005. 44(2), s. 743–750. doi: 10.21873/anticanres.16865. Fulltekst i vitenarkiv
• Botn, Cecilie Strauman & Solbrække, Kari Nyheim (2024). Når helsetjenesten definerer hvordan man skal bli frisk. I Solbrække, Kari Nyheim & Bondevik, Hilde (Red.), Kreftoverlevelse på nye måter. Scandinavian Academic Press . ISSN 9788230403310. s. 121–144. doi: 10.62342/SAP.OA.2006. Fulltekst i vitenarkiv Vis sammendrag

  I dagens Norge er det mer enn 300 000 personer som har hatt kreft, eller som lever med kreftsykdom. Kunnskapen om de sosiale og personlige sidene ved det å overleve en kreftsykdom er likevel begrenset, noe denne boka tar opp i bred forstand. Vekker alle former for kreft, bivirkninger av behandlingen eller senvirkninger like mye empati? Hvilket språk er tilgjengelige for dem som rammes? Hvem setter dagsorden for hvordan sykdom generelt, og kreft spesielt, tas opp offentlig? Hvilke stemmer blir hørt? Og hvordan kan kreftoverlevere i større grad forstås og møtes på egne premisser? I denne antologien undersøker forskere med ulik fagbakgrunn hvordan det erfares å få kreft, og hvordan disse erfaringene er knyttet til storsamfunnets forestillinger om kreft og kreftoverlevelse. På film, i blogger og andre personlige beretninger beskrives ofte kreftoverleveren som en helt. På hvilken måte påvirker dette idealet om heroisme mennesker som lever med – og har levd med – kreft? Boka tar særlig for seg erfaringer med gynekologisk kreft, kolorektal kreft og lungekreft, kreftformer som har vært lite synlige i dagens kulturelle offentlighet. Den bygger på nyskapende forskning og vil være interessant for alle som er i berøring med kreft, også helsepersonell.

• Solbrække, Kari Nyheim (2024). Om kolorektal kreft og den (over)levde kroppens betydning. I Solbrække, Kari Nyheim & Bondevik, Hilde (Red.), Kreftoverlevelse på nye måter. Scandinavian Academic Press . ISSN 9788230403310. s. 145–168. doi: 10.62342/SAP.OA.2006. Fulltekst i vitenarkiv Vis sammendrag

  I dagens Norge er det mer enn 300 000 personer som har hatt kreft, eller som lever med kreftsykdom. Kunnskapen om de sosiale og personlige sidene ved det å overleve en kreftsykdom er likevel begrenset, noe denne boka tar opp i bred forstand. Vekker alle former for kreft, bivirkninger av behandlingen eller senvirkninger like mye empati? Hvilket språk er tilgjengelige for dem som rammes? Hvem setter dagsorden for hvordan sykdom generelt, og kreft spesielt, tas opp offentlig? Hvilke stemmer blir hørt? Og hvordan kan kreftoverlevere i større grad forstås og møtes på egne premisser? I denne antologien undersøker forskere med ulik fagbakgrunn hvordan det erfares å få kreft, og hvordan disse erfaringene er knyttet til storsamfunnets forestillinger om kreft og kreftoverlevelse. På film, i blogger og andre personlige beretninger beskrives ofte kreftoverleveren som en helt. På hvilken måte påvirker dette idealet om heroisme mennesker som lever med – og har levd med – kreft? Boka tar særlig for seg erfaringer med gynekologisk kreft, kolorektal kreft og lungekreft, kreftformer som har vært lite synlige i dagens kulturelle offentlighet. Den bygger på nyskapende forskning og vil være interessant for alle som er i berøring med kreft, også helsepersonell.

• Solbrække, Kari Nyheim & Bondevik, Hilde (2024). Kreftoverlevelse på nye måter – en introduksjon. I Solbrække, Kari Nyheim & Bondevik, Hilde (Red.), Kreftoverlevelse på nye måter. Scandinavian Academic Press . ISSN 9788230403310. s. 7–19. doi: 10.62342/SAP.OA.2001. Fulltekst i vitenarkiv Vis sammendrag

  I dagens Norge er det mer enn 300 000 personer som har hatt kreft, eller som lever med kreftsykdom. Kunnskapen om de sosiale og personlige sidene ved det å overleve en kreftsykdom er likevel begrenset, noe denne boka tar opp i bred forstand. Vekker alle former for kreft, bivirkninger av behandlingen eller senvirkninger like mye empati? Hvilket språk er tilgjengelige for dem som rammes? Hvem setter dagsorden for hvordan sykdom generelt, og kreft spesielt, tas opp offentlig? Hvilke stemmer blir hørt? Og hvordan kan kreftoverlevere i større grad forstås og møtes på egne premisser? I denne antologien undersøker forskere med ulik fagbakgrunn hvordan det erfares å få kreft, og hvordan disse erfaringene er knyttet til storsamfunnets forestillinger om kreft og kreftoverlevelse. På film, i blogger og andre personlige beretninger beskrives ofte kreftoverleveren som en helt. På hvilken måte påvirker dette idealet om heroisme mennesker som lever med – og har levd med – kreft? Boka tar særlig for seg erfaringer med gynekologisk kreft, kolorektal kreft og lungekreft, kreftformer som har vært lite synlige i dagens kulturelle offentlighet. Den bygger på nyskapende forskning og vil være interessant for alle som er i berøring med kreft, også helsepersonell.

Se alle arbeider i NVA

• Helseth, Sølvi; Pettersen, Kjell Sverre & Wahl, Astrid Klopstad (2024). Helsekompetanse Teori, forskning og praksis. Fagbokforlaget. ISBN 9788245043426. 296 s. Fulltekst i vitenarkiv
• Houge, Anette Bringedal & Kruse, Anja Emilie (2024). Etisk ubehag. En ærlig lærebok om kvalitativ forskning på sensitive temaer. Universitetsforlaget. ISBN 9788215068558. 256 s. Fulltekst i vitenarkiv
• Bostad, Inga & Bondevik, Hilde (2024). Tenkepauser - filosofi- og vitenskapsteori (kurdisk oversettelse). SJH. ISBN 9788279500636. 334 s. Fulltekst i vitenarkiv
• Solbrække, Kari Nyheim & Bondevik, Hilde (2024). Kreftoverlevelse på nye måter. Scandinavian Academic Press . ISBN 9788230403310. 253 s. doi: 10.62342/SAP.OA.2000. Fulltekst i vitenarkiv Vis sammendrag

  I dagens Norge er det mer enn 300 000 personer som har hatt kreft, eller som lever med kreftsykdom. Kunnskapen om de sosiale og personlige sidene ved det å overleve en kreftsykdom er likevel begrenset, noe denne boka tar opp i bred forstand. Vekker alle former for kreft, bivirkninger av behandlingen eller senvirkninger like mye empati? Hvilket språk er tilgjengelige for dem som rammes? Hvem setter dagsorden for hvordan sykdom generelt, og kreft spesielt, tas opp offentlig? Hvilke stemmer blir hørt? Og hvordan kan kreftoverlevere i større grad forstås og møtes på egne premisser? I denne antologien undersøker forskere med ulik fagbakgrunn hvordan det erfares å få kreft, og hvordan disse erfaringene er knyttet til storsamfunnets forestillinger om kreft og kreftoverlevelse. På film, i blogger og andre personlige beretninger beskrives ofte kreftoverleveren som en helt. På hvilken måte påvirker dette idealet om heroisme mennesker som lever med – og har levd med – kreft? Boka tar særlig for seg erfaringer med gynekologisk kreft, kolorektal kreft og lungekreft, kreftformer som har vært lite synlige i dagens kulturelle offentlighet. Den bygger på nyskapende forskning og vil være interessant for alle som er i berøring med kreft, også helsepersonell.

Se alle arbeider i NVA

• Østerås, Nina & Moseng, Tuva (2024). Nye anbefalinger for behandling av hofte- og kneartrose. [Journal]. Dagens Medisin. Fulltekst i vitenarkiv
• Østerås, Nina (2024). Artrose. Dette bør du vite om stamcellebehandling. Hevder 8 av 10 blir smertefri. [Journal]. VG, online og papirutgave. Fulltekst i vitenarkiv
• Østerås, Nina (2024). Implementing OA treatment recommendations in primary care postponed joint replacement in hip and knee joints – 8 years follow-up of a cluster RCT. Fulltekst i vitenarkiv Vis sammendrag

  Nina Østerås, Tuva Moseng, Leti Van Bodegom-Vos, Krysia Dziedzic, Bård Natvig, Jan Harald Røtterud, T.P.M. Vliet Vlieland, Anne Marie Fenstad, Ove Furnes, Kåre Birger Hagen.

• Moseng, Tuva & Østerås, Nina (2024). Nye retningslinjer: Artrose-behandlingen ekspertene anbefaler. [Journal]. VG online og papirutgave. Fulltekst i vitenarkiv Vis sammendrag

  Saken er re-publisert i VG i mars 2024 og juni 2024

• Østerås, Nina & Moseng, Tuva (2024). Oppdaterte behandlingsanbefalinger for kne- og hofteartrose. [Journal]. Sykepleien. Fulltekst i vitenarkiv
• Østerås, Nina (2024). EULAR recommendations for the non-pharmacological core management of hip and knee osteoarthritis: 2023 update. Fulltekst i vitenarkiv Vis sammendrag

  Tuva Moseng, Theodora P M Vliet Vlieland, Simone Battista, David Beckwée, Vladimira Boyadzhieva, Philip G Conaghan, Daniela Costa, Michael Doherty, Andrew G Finney, Tsvetoslav Georgiev, Milena Gobbo, Norelee Kennedy, Ingvild Kjeken, Féline P B Kroon, L Stefan Lohmander, Hans Lund, Christian D Mallen, Karel Pavelka, Irene A Pitsillidou, Margaret P Rayman, Anne Therese Tveter, Johanna E Vriezekolk, Dieter Wiek, Gustavo Zanoli, Nina Østerås.

• Lingaas, Carola Diane; Ellefsen, Rune & Houge, Anette Bringedal (2024). 'A relatively spacious margin for tasteless statements': A qualitative analysis of Norwegian courts’ demarcation of punishable hate speech. Fulltekst i vitenarkiv
• Østerås, Nina & Moseng, Tuva (2024). Dette er de nye behandlingsanbefalingene for hofteartrose og kneartrose. [Journal]. Healthtalk. Fulltekst i vitenarkiv
• Thomassen, Emil E. Kvernberg; Berg, Inger Jorid; Kristianslund, Eirik; Tveter, Anne Therese & Østerås, Nina (2024). Studie fra Diakonhjemmet: 96 prosent ønsket digital hjemmeoppfølging. [Journal]. Dagens Medisin. Fulltekst i vitenarkiv
• Østerås, Nina (2024). Flinkere fastleger og lavere kostnader med strukturert artroseopplegg. [Journal]. Allmennmedisinsk forskningsfond. Fulltekst i vitenarkiv
• Finbråten, Hanne Søberg & Wahl, Astrid Klopstad (2024). Hvordan forske på helsekompetanse. I Helseth, Sølvi; Pettersen, Kjell Sverre & Wahl, Astrid Klopstad (Red.), Helsekompetanse Teori, forskning og praksis. Fagbokforlaget. ISSN 9788245043426. s. 38–50. Fulltekst i vitenarkiv
• Bondevik, Hilde (2024). Vilde Berg klarer alt - unntatt å dø. Samtale med Nina Kraft. Samtiden 22.10.2024. Teateroppsetning: Jeg foreslår at vi våkner av Beate Grimsrud. [Journal]. Samtiden. Fulltekst i vitenarkiv
• Lundkvist, Nina Beate Tørum; Romm, Kristin Lie; Synnes, Oddgeir & Bondevik, Hilde (2024). Kreativ skriving i psykisk helsevern. En psykiater, en litteraturviter og en idéhistoriker utforsker potensialet i kreativ skriving som døråpner for unge voksne med psykose. [Journal]. Dialog. Fulltekst i vitenarkiv
• Østerås, Nina (2024). Implementing OA treatment recommendations in primary care postponed joint replacements in hip and knee joints – 8 year follow-up of a cRCT. Fulltekst i vitenarkiv Vis sammendrag

  Nina Østerås, Tuva Moseng, Leti Van Bodegom-Vos, Krysia Dziedzic, Bård Natvig4, Jan Harald Røtterud, T.P.M. Vliet Vlieland, Anne Marie Fenstad, Ove Furnes, Kåre Birger Hagen

• Kunøe, Nikolaj; Indregard, Anne Marthe Rustad & Nussle, Hans Martin (2024). Open-door policy versus treatment-as-usual in urban psychiatric inpatient wards: a pragmatic, randomised controlled, non-inferiority trial in Norway. Fulltekst i vitenarkiv
• Skilbrei, May-Len; Solbrække, Kari Nyheim & Holen, Mari (2024). Experience as Evidence: Patient organisations as knowledge agents. Fulltekst i vitenarkiv
• Romm, Kristin Lie; Engen, Magnus Johan; Gardsjord, Erlend Strand; Bondevik, Hilde; Hvattum, Mari & Haugsgjerd, Svein [Vis alle 8 forfattere av denne artikkelen] (2024). Gaustad asyl som fremtidens psykiatri? Fulltekst i vitenarkiv
• Feiring, Marte & Mengshoel, Anne Marit (2024). KJØNN OG HELSE PÅ DEN POLITISKE DAGSORDEN En sammenlignende analyse av to politikkdokumenter. Fulltekst i vitenarkiv
• Skonnord, Trygve; Vøllestad, Nina Køpke; Heggen, Kristin Margrete & Brekke, Mette (2024). GPs of the future as agents of sustainability. Fulltekst i vitenarkiv
• Østerås, Nina (2024). Artrose: Treningen som minsker smertene. [Journal]. VG online og papirutgave. Fulltekst i vitenarkiv
• Houge, Anette Bringedal (2024). Voldtekt: Debatten må startes på nytt. Fulltekst i vitenarkiv
• Østerås, Nina (2024). Trapper opp mot artrose. [Journal]. VG . Fulltekst i vitenarkiv
• Østerås, Nina (2024). Reduser stivhet og smerter: Slik brukes trappen mot artrose. [Journal]. VG +. Fulltekst i vitenarkiv
• Buer, Sofie; Hagen, Bjørn Ingulfsvann; Nygaard, Anders Benteson; Bø, Ragnhild; Ellingjord-Dale, Merete & Istre, M.S. [Vis alle 12 forfattere av denne artikkelen] (2024). Cognitive rehabilitation of executive functions and attention in post-COVID-19 condition: A randomized controlled trial. Fulltekst i vitenarkiv
• Solbrække, Kari Nyheim & Bondevik, Hilde (2024). "Kreftoverlevelse på nye måter». Presentasjon av forskningsfunn og samtale. Fulltekst i vitenarkiv
• Østerås, Nina (2024). HPR - Take home message. Fulltekst i vitenarkiv
• Nussle, Hans Martin & Kunøe, Nikolaj (2024). Åpen dør policy i akutt psykisk helsevern: Erfaringer med implementering og etterlevelse ved Lovisenberg Diakonale Sykehus. Fulltekst i vitenarkiv
• Solbrække, Kari Nyheim (2024). Kreftoverlevelse i et sosio-kulturelt perspektiv; Noen hovedfunn knyttet til livet etter gynekologisk kreft. Fulltekst i vitenarkiv
• Houge, Anette Bringedal (2024). (UN)PREDICTABLE OUTCOMES? The role of forensic expertise in rape cases. Fulltekst i vitenarkiv
• Østerås, Nina (2024). Artrose. Behandlingsanbefalinger. Effekt av konservativ behandling. Fulltekst i vitenarkiv
• Kunøe, Nikolaj (2024). A pragmatic randomised controlled non-inferiority trial of open-door policy versus treatment as usual in urban psychiatric inpatient wards. Fulltekst i vitenarkiv
• Nordén, Kristine Røren; semb, anne grete; Dagfinrud, Hanne; Sexton, Joe; Fongen, Birgit Camilla & Blanck, Thalita [Vis alle 9 forfattere av denne artikkelen] (2024). Studie: Intensiv trening er effektivt og trygt for pasienter med inflammatorisk leddsykdom. [Journal]. Dagens Medisin. Fulltekst i vitenarkiv
• Indregard, Anne Marthe Rustad; Kunøe, Nikolaj & Nussle, Hans Martin (2024). Open-door policy versus treatment-as-usual in urban psychiatric inpatient wards: a pragmatic, randomised controlled, non-inferiority trial in Norway. Fulltekst i vitenarkiv
• Kunøe, Nikolaj; Indregard, Anne Marthe Rustad; Nussle, Hans Martin; Tesli, Martin Steen; Vandvik, Per Olav & Gather, Jakov (2024). A pragmatic randomised controlled non-inferiority trial of open-door policy versus treatment as usual in urban psychiatric inpatient wards. Fulltekst i vitenarkiv
• Østerås, Nina (2024). Implementere kunnskapsbaserte retningslinjer for behandling, monitorere kvalitet og forbruksrater, bedre pasientforløp og samhandling. Fulltekst i vitenarkiv
• Moger, Tron Anders; Vøllestad, Nina Køpke; Tjerbo, Trond; Hellesø, Ragnhild; Bragstad, Line Kildal & Holte, Jon Helgheim [Vis alle 8 forfattere av denne artikkelen] (2024). INOREG workshop 2024. Fulltekst i vitenarkiv
• Amundsen, Olav; Moger, Tron Anders & Vøllestad, Nina Køpke (2024). Arbeid med registerdata - Erfaringer fra INOREG-prosjektet. Fulltekst i vitenarkiv
• Østerås, Nina (2024). Behandlingsanbefalinger for artrose. Siste nytt fra artrosekongress. Fulltekst i vitenarkiv
• Solbrække, Kari Nyheim (2024). Unpacking and contextualizing aspects of embodiment and gender in gynecological cancer survivorship. Fulltekst i vitenarkiv
• Solbrække, Kari Nyheim & Bondevik, Hilde (2024). Kreftoverlevelse som tverrfaglig forskningsfelt. Fulltekst i vitenarkiv
• Isachsen, Henriette Bertheussen; Nussle, Hans Martin & Kunøe, Nikolaj (2024). Studie: Pasient-tilfredsheten var høyere på «åpen-dør»-postene. [Journal]. Dagens medisin. Fulltekst i vitenarkiv
• Ingebritsen, Julia Renate & Mengshoel, Anne Marit (2024). Fibromyalgi - smerte hele døgnet. [Journal]. VG : Verdens gang. Fulltekst i vitenarkiv
• Sollund, Adrian & Mengshoel, Anne Marit (2024). Dette bør du unngå. [Journal]. Dagbladet. Fulltekst i vitenarkiv
• Bergvad, Ingvild Buset; Lerdal, Anners & Lindberg, Maren Falch (2024). Body mass index and physical activity in patients undergoing total knee arthroplasty – a prospective cohort study. Fulltekst i vitenarkiv
• Veshovda, Solveig; Eik, Hedda; Andersen, Marit Helen; Jahre, Henriette & Riiser, Kirsti (2024). Helsekompetanse og muskelskjelettplager hos ungdom: en scoping review. Fulltekst i vitenarkiv
• Buer, Sofie; Hagen, Bjørn Ole Ingulfsvann; Nygaard, Anders; Søraas, Arne Vasli Lund; Landrø, Nils Inge & Bø, Ragnhild [Vis alle 11 forfattere av denne artikkelen] (2024). Cognitive rehabilitation of executive functions and attention in post-COVID-19 condition: A randomized controlled trial. Fulltekst i vitenarkiv
• Buer, Sofie; Stubberud, Jan Egil; Hagen, Bjørn Ole Ingulfsvann; Nygaard, Anders Benteson; Søraas, Arne Vasli Lund & Lerdal, Anners [Vis alle 12 forfattere av denne artikkelen] (2024). Executive functions following COVID-19. Fulltekst i vitenarkiv Vis sammendrag

  A significant proportion of patients recovering from SARS-CoV-2 (COVID-19) exhibit deficits in executive functions. This presentation highlighted preliminary results from a cross-sectional population study examining these executive deficits following SARS-CoV-2 infection. Additionally, it introduced early findings from a randomized controlled trial (RCT) assessing the effectiveness of Goal Management Training in improving executive functions for individuals experiencing Post-COVID-19 conditions.

• Østerås, Nina (2024). Implementing and evaluating a structured model of care for hip and knee osteoarthritis. Fulltekst i vitenarkiv
• Skøyeneie, Sigrid Cecilie Tinglum & Myhre, Anders Eivind (2026). Hospital at Home following Allogeneic Haematopoietic Stem Cell Transplantation: A qualitative study of patients’ and family caregivers’ experiences of an innovative health care model within the specialist health care service in Norway. Universitetet i Oslo. ISSN 9788234807688. Fulltekst i vitenarkiv Vis sammendrag

  Home-based models, including Hospital at Home (HaH), aims to substitute traditional hospitalisation by delivering hospital-level care to patients at home. The models address challenges related to population growth, rising healthcare costs, and limited resources, while also aiming to enhance patients’ experiences during illness and treatment. HaH has increased globally, including in haematology and haematopoietic stem cell transplantation (HSCT). However, there is limited research concerning the subjective experiences with home-based models. This thesis contains three studies with a qualitative research design, using Braun and Clarke’s reflexive thematic analysis to identify themes across the collected data. Haematology patients and family caregivers were interviewed individually about their experiences with HaH following HSCT. Patients’ experiences were explored in Study I, family caregivers’ experiences were examined in Study II, and their perceptions of safety in HaH were investigated in Study III. Findings revealed several advantages of participating in HaH. Patients experienced an improved recovery process compared to in the hospital, highlighting living closer to normal with their family. Additionally, they valued the home environment with easy kitchen access, enhancing their appetite, and more space for activity. Caregivers appreciated participation as it allowed them to support their family member during the treatment process. They gained better insight into what the patient was experiencing, and felt more included as a resource than in hospitals. Both patient and family caregivers found HaH to be safe, reassured by the predictable, close follow-up provided by qualified healthcare professionals. Findings demonstrate benefits from participating, suggesting HaH can be an attractive alternative to traditional hospitalisation.

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